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ASH President Thanks Congress, President for Support of Legislation to Improve Sickle Cell Disease Data Collection and Care


Today, Congress passed the bi-partisan Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018. This legislation will authorize a program within the Centers for Disease Control and Prevention (CDC) that will allow states, academic institutions, and non-profit organizations to apply for grants to gather information on the prevalence of sickle cell disease (SCD) and the health outcomes, complications, and treatment that people with SCD experience.

This bill also reauthorizes SCD treatment grants awarded by the Health Resources and Services Administration (HRSA), which will help to improve access to care and quality of care for individuals with SCD. President Donald Trump is expected to sign the bill into law.

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