Legislation and Policy

Raising the Voice of SCD

Learn ways to impact health policy through advocacy

Learn more about:

How Do I Stay up to Date on SCD Policy News and Events?
Sickle Cell Disease Policy
What are the Words Used to Describe Legislation and Policy?
What Are Some SCD Advocacy Talking Points?
How do I Advocate by Voting in Elections?
How Do I Advocate as a Non-Profit Organization?
What are the Emerging Roles for SCD Health Professionals as Advocates?
How to Register for Complaints & Appeals if you Believe you Have Been Discriminated Against or Your Rights Have Been Violated?
How Likely are U.S. Health Insurers to Cover Drugs and Preventive Care Benefits for Rare Diseases?

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