Trusted Resources: News & Events
Latest announcements and gatherings
Siri saves sick girl from Harvey floodwaters
Stranded outside in the rising waters of Hurricane Harvey, feverish and in great pain, 14-year-old Tyler Frank tried desperately to think of ways to get herself and her family to safety.
It happened in the nick of time. Tyler has a genetic disorder called sickle cell anemia. When Harvey hit, she suffered a sickle cell crisis, as her stiff and oddly shaped red blood cells clogged up her blood vessels and prevented oxygen from reaching parts of her body.
The pain of a sickle cell crisis can be worse than the pain of childbirth, according to the National Institutes of Health. Trauma or exposure to cold can trigger a crisis, according to Dr. Titilope Fasipe, Tyler’s hematologist at Texas Children’s Hospital. Tyler suffered both.
In the early morning hours of August 27, Tyler, her mother and three of her brothers awoke to water in their home up to Tyler’s chest. Soon, the water was nearly over her head.
+myBinderRelated Content
-
Living Well With Sickle Cell: Andre Harris (Video)My name is Andre Harris. We are in Houst...
-
My Red Cell Exchangehttps://www.youtube.com/watch?v=HTcLwgLE...
-
Our Family’s Journey With Sickle Cell DiseaseJune 19th is World Sickle Cell Day. We s...
-
Inflammatory molecule reduction with hydroxyurea therapy in children with sickle cell anemiaChildren with sickle cell anemia (SCA) s...
-
Reduced fitness and abnormal cardiopulmonary responses to maximal exercise testing in children and young adults with...Physiologic contributors to reduced exer...
-
‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted AsideAmy Mason had toughed it out for hours o...
-
Stigmatizing language in medical records affects patient care, study showsPhysicians who use stigmatizing langua...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.