Advancing Sickle Cell Research

About oneSCDvoice

oneSCDvoice was created with the vision of empowering those impacted by sickle cell disease through facilitating access to information and support from the sickle cell disease community.

This innovative digital education platform was developed in collaboration with the community, including our working groups of more than 20 sickle cell disease patients, advocates, and medical professionals, as well as members from the Sickle Cell Disease Association of America, Pfizer Rare Disease, and rareLife solutions. Building off of rareLife’s “onevoice” community technology, the collaboration members guided the customization of the platform by identifying knowledge gaps, sharing information preferences, and continually engaging their networks for additional insights.

The site is made possible by financial support from Pfizer Rare Disease as part of its mission to offer quality resources to advance the health of people impacted by sickle cell disease. Pfizer does not own or control oneSCDvoice and does not influence the information or services.

We hope you find the oneSCDvoice platform helpful to you. Please click here to share any feedback, questions, or any general comments. You can also find answers to important questions on topics such as privacy and security in our Frequently Asked Questions.

The oneSCDvoice Team