Trusted Resources: News & Events

Latest announcements and gatherings

172 resources available:

SCDAA News Advisory: Partial Hold on Gene Therapy Trial

Source: www.sicklecelldisease.org
Dec 20, 2021

Experimental Gene Therapy Reverses Sickle Cell Disease for Years

Source: www.cuimc.columbia.edu
Dec 13, 2021

CTX001 Continues to Show Promise in Severe SCD

Source: sicklecellanemianews.com
Jul 8, 2021

MARAC Advisory Statement: Gene Therapy & Bone Marrow Therapies

Source: www.sicklecelldisease.org
May 15, 2021
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110 resources available:

SCDAA Releases Comments on the CDC’s Opioid Guidelines

Source: www.sicklecelldisease.org
May 16, 2022

MARAC Advisory: COVID-19 and Sickle Cell Disease

Source: www.sicklecelldisease.org
Mar 17, 2022

Support the CDC’s World Sickle Cell Day Social Media Campaign!

Source: www.sicklecelldisease.org
Mar 15, 2022

SCDAA Celebrates Black History Month: Miles Davis

Source: www.sicklecelldisease.org
Feb 4, 2022
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56 resources available:

Regina Hartfield Is Now the CEO and President of SCDAA

Source: www.hcplive.com
Jan 15, 2022

Q&A With Regina Hartfield, New CEO of the SCDAA

Source: sicklecellanemianews.com
Dec 28, 2021

Sickle Cell Disease Association of America, Inc. Names New CEO & President

Source: www.sicklecelldisease.org
Dec 9, 2021
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180 resources available:

Rare Disease Day – Home

Source: www.rarediseaseday.org
Feb 28, 2023

The University City Turkey Trot

Source: sicklecellpartnersofthecarolinas.org
Nov 24, 2022

2nd Annual Caregivers Summit – Sickle Cell Community Consortium

Source: www.scdcaregivers.org
Nov 11, 2022

2022 PCORI Annual Meeting

Source: www.pcori.org
Oct 26, 2022

Rare Diseases and Orphan Products Breakthrough Summit

Source: nordsummit.org
Oct 17, 2022
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