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8th Annual Walk With the Stars – Sickle Cell Disease Association of America, Inc.

Did you know that Walk With the Stars is one of SCDAA’s largest events dedicated to finding better treatments and a cure for sickle cell disease? Every dollar that you raise goes towards preventing the complications of sickle cell disease through awareness, education, advocacy and research!

This year’s Walk with the Stars will be held virtually, so walk, run or dance where you are to support Sickle Cell Disease Association of America (SCDAA) and celebrate your steps with us on July 10, 2021! Prizes will be available for top individuals and teams.

For the past eight years, Walk with the Stars has helped us make a big impact in sickle cell awareness, education, advocacy and research. SCDAA to-date has raised over $500,000 from this event for better treatments and improvements in the quality of health for individuals, families and communities affected by sickle cell disease.

Jul 10, 2021

IASCNAPA Sickle Cell Disease Conference: Treating the Whole Person

Date: April 14-15, 2021

Place: Online/Virtual

Program Overview: This is a one-day conference designed to provide information on treating the whole person with sickle cell disease. Sickle cell experts will provide practical tools using case studies and interactive exercises. Sessions will include pain management and mental health tools; transition skills; and “out of the box” techniques such as virtual reality, and drama therapy. Practical sickle cell resources for nurses, advanced practice practitioners (APPs), and other healthcare professionals will be provided. New sickle cell disease treatment options and unconscious bias in the workplace will be topics of discussion as well as an innovative sickle cell disease APP residency program and a unique online sickle cell nursing curriculum. People with sickle cell disease will be an integral part of the conference and will provide input on "a day in the life".

Target Audience: This conference is open to the public; it is designed for people with sickle cell disease, their caregivers, healthcare providers, sickle cell advocates, and people who want to learn about sickle cell disease.

Learning Objectives:

After completing this course, you should be able to:

• Discuss new therapies for sickle cell disease
• Understand unconscious bias in treating people with sickle cell disease
• Discuss innovative techniques for transition readiness


Apr 14, 2021