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happenings

5th Annual Sickle Cell Patient and Family Educational Symposium

This is an educational conference planned by and for consumers with sickle cell disease to address issues that are most relevant to consumers. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease.

Seats Are Limited. Register now to reserve your spot. Remember, this is the only conference in the sickle cell community organized entirely by Warriors and Caregivers for Warriors and Caregivers. We welcome everyone living with sickle cell, warriors, parents, teens, and understanding health care professionals. See you soon!

When:

August 1-5, 2018

Place:

Sheraton Downtown Memphis, Tennessee, United States

 

Aug 1, 2018
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spotlight

With oneSCDvoice, People Living with Sickle Cell Disease Have an Online Community to Call their Own

By Freddie Allen (Editor-In-Chief, NNPA Newswire) People living with sickle cell disease (SCD) fight a lifelong, uphill battle against severe pain, isolation and a medical establishment often ill-equipped to offer compassionate, informed care. That’s why Pfizer Inc., partnered with the Sickle Cell Disease Association of America (SCDAA) to create, oneSCDvoice, a digital platform that provides access to resources designed to increase knowledge, emotional support, and help empower people living with SCD, according to a press release about the new platform. SCDAA, is a national organization that has supported the needs of the SCD community since 1971 with 50-plus chapters that provide critical services to the local SCD community, the press release stated. The Centers for Disease Control and Prevention says that sickle cell disease occurs in roughly 1 out of every 365 Black or African American births and about 1 in 13 Black or African American babies is born with sickle cell trait (SCT).
Mar 22, 2018