Trusted Resources: News & Events
Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
+myBinderRelated Content
-
Gene Therapy for Blood DisordersIn the context of intense scrutiny over ...
-
T-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
-
Is Caregiver Education About Sickle Cell Trait Effective?Despite universal newborn screening that...
-
The neglected and forgotten Sickle Cell Disease – A silent mass killer in Kenyahttps://www.youtube.com/watch?time_conti...
-
Parents’ StoriesFor couples of African, Caribbean, Middl...
-
Tips for supporting students with sickle cell diseaseThe purpose of this booklet is to descri...
-
The 14th Annual Sickle Cell Disease Research & Educational Symposium and 43rd National Sickle Cell Disease Scie...The Symposium is an exciting three-day m...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.