DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
The Sickle Cell Consortium (SC3) announces and extends an invitation to the upcoming 8th Annual Leadership Summit & General Assembly of Patients, Caregivers & CBOs. This annual assembly, composed of a diverse range of sickle cell stakeholders, will occur from April 10-14, 2024, in Atlanta, Georgia, at the Hilton Garden Inn Atlanta-Buckhead.
The Sickle Cell Consortium is a collaborative network of sickle cell patients, caregivers, and community-based organizations (CBOs) united to ensure that the patient/caregiver voice is at the center of sickle cell research, education, awareness, advocacy, legislation, and policy. The Leadership Summit is the convening meeting tasked with defining and prioritizing the top needs and gaps within the sickle cell community and developing community-based solutions.
This year, we are focused on “Leading the Way” with training and workshops designed to embrace this new era in advocacy, marked by the newly approved FDA gene therapies for sickle cell, the rise of Artificial Intelligence (AI) technologies, and increase understanding of collective self-care and awareness of the devastating consequences of leadership burnout and compassion fatigue.
Share
+myBinderRelated Content
-
education & researchParents Handbook for Sickle Cell DiseaseThis is a parents handbook for sickle ce...
-
news & eventsNational Sickle Cell Advocacy Day 2020 — Sickle Cell Disease Association of America – CANCELEDPlease join the Sickle Cell Disease Asso...
-
news & eventsSickle Cell in Focus Conference 2018After an exciting event in Kingston, Jam...
-
videos & visualsSickle cell adult and pediatric provider interview – Dr Nirmish Shahhttps://www.youtube.com/watch?v=6fFmmPrd...
-
news & eventsSCANJ: 11th Annual Statewide Sickle Cell Disease SymposiumWe enthusiastically invite you to The S...
-
videos & visualsLia – A 2014 Short Filmhttps://www.youtube.com/watch?v=TcX_v6Os...
-
education & researchImproving disease knowledge in 6- to 10-year-olds with sickle cell disease: A quasi-experimental studyBackground: Increasing knowledge and un...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.