Trusted Resources: News & Events

Latest announcements and gatherings

53 resources available:

SCDAA Partners With Phi Beta Sigma Fraternity

Source: www.sicklecelldisease.org
Mar 17, 2022

Medicaid to Cover Endari for Sickle Cell Disease in the U.S.

Source: sicklecellanemianews.com
Jan 30, 2018

Matthew Porteus awarded grant for sickle cell anemia work

Source: med.stanford.edu
Oct 3, 2017

DDCF Awards $6 Million for Sickle Cell Disease Research

Source: philanthropynewsdigest.org
Sep 23, 2017

PCORI Board Approves $18 Million for Research on Sickle Cell Disease

Source: sicklecellanemianews.com
Sep 21, 2017

GlycoMimetics Announces Pricing of Public Offering of Common Stock

Source: www.businesswire.com
May 24, 2017
183 resources available:

The CRISPR Era Is Here

Source: www.theatlantic.com
Nov 28, 2023

Corinna Schultz, MD: Does Sickle Cell Trait Get Discussed?

Source: www.hcplive.com
Dec 13, 2022

Serious Gum Disease With Sickle Cell May Lead to Repeat Pain Crises

Source: sicklecellanemianews.com
Nov 29, 2022

Lab-Grown Blood: What Is It, and How Could It Be Useful?

Source: www.medicalnewstoday.com
Nov 11, 2022

MARAC Encourages Clinical Research Studies

Source: www.sicklecelldisease.org
Oct 19, 2022

SCDAA News Advisory: Partial Hold on Gene Therapy Trial

Source: www.sicklecelldisease.org
Dec 20, 2021

Experimental Gene Therapy Reverses Sickle Cell Disease for Years

Source: www.cuimc.columbia.edu
Dec 13, 2021

CTX001 Continues to Show Promise in Severe SCD

Source: sicklecellanemianews.com
Jul 8, 2021

MARAC Advisory Statement: Gene Therapy & Bone Marrow Therapies

Source: www.sicklecelldisease.org
May 15, 2021

Gut Microbiome Translates Stress Into Sickle Cell Crises

Source: medicaldialogues.in
Aug 4, 2020

Bluebird Bio Presents Data From LentiGlobin Gene Therapy Trial

Source: sicklecellanemianews.com
Jun 16, 2020

Partnership to Ensure Supply of LentiGlobin, Potential Gene Therapy

Source: sicklecellanemianews.com
May 21, 2020

Sickle cell trait may not increase the risk of death

Source: www.washingtonpost.com
Aug 4, 2019

Sickle Cell Patient Receives CRISPR Gene Therapy

Source: www.labroots.com
Jul 30, 2019

More Online Queries in Winter Suggest Seasonal Variations in SCD Activity

Source: sicklecellanemianews.com
Apr 25, 2019

Big Jump in Success for Sickle Cell Transplants

Source: www.medpagetoday.com
Mar 15, 2019

Could Gene Therapy Cure Sickle Cell Anemia?

Source: www.cbsnews.com
Mar 10, 2019

Vaso-Occlusive Pain Linked to Menstruation in Some Patients, Study Finds

Source: sicklecellanemianews.com
Jan 24, 2019

Safety and early hints of benefit seen in phase 1b trial of PF-04447943

Source: sicklecellanemianews.com
Jan 22, 2019

CTX001 Earns FDA’s Fast Track Status for Treating Sickle Cell Disease

Source: sicklecellanemianews.com
Jan 7, 2019

Gene therapy targets sickle-cell disease

Source: www.nature.com
Dec 12, 2018

Gene therapies could transform the treatment of sickle cell disease

Source: www.washingtonpost.com
Dec 3, 2018

Research Team Recognized for Organ-on-a-Chip Design

Source: engineering.tamu.edu
Nov 8, 2018

How sickled red blood cells stick to blood vessels

Source: news.mit.edu
Sep 3, 2018

Gene-Therapy Company Crispr Drops as FDA Puts Trial on Hold

Source: www.bloomberg.com
May 31, 2018

Stigmatizing language in medical records affects patient care, study shows

Source: sicklecellanemianews.com
May 15, 2018

Sickle cell trait may not contribute to stroke risk

Source: www.genomeweb.com
Apr 23, 2018

Is Caregiver Education About Sickle Cell Trait Effective?

Source: www.newswise.com
Apr 17, 2018

Healthy red blood cells owe their shape to muscle-like structures

Source: www.sciencedaily.com
Apr 4, 2018

The impact of rare disease on family caregivers

Source: www.prweb.com
Feb 28, 2018

Kids Who Need Sickle Cell Meds Don’t Always Get Them

Source: health.usnews.com
Feb 16, 2018

Progress in pursuit of sickle cell cure

Source: www.sciencedaily.com
Feb 16, 2018

First Sickle Cell Patient Dosed in Phase 2a of IMR-687

Source: www.hcplive.com
Feb 14, 2018

University researchers develop more complete model of sickle cell

Source: www.browndailyherald.com
Feb 6, 2018

Fighting sickle cell disease by looking back to babyhood

Source: academicdepartments.musc.edu
Oct 6, 2017

FDA Approves Glutamine Powder for Sickle Cell Disease

Source: www.fda.gov
Jul 7, 2017

Only 21% of Kids with ADHD and SCD Are Treated for Attention Deficit

Source: sicklecellanemianews.com
Jun 8, 2017

Researchers Develop Test for SCA to be Used in Low-Resource Settings

Source: sicklecellanemianews.com
Jun 1, 2017

Imara’s IMR-687 for SCD Receives FDA Rare Pediatric Disease Designation

Source: sicklecellanemianews.com
May 16, 2017

Study Suggests Ways of Improving Newborn Screening for Sickle Cell Disease

Source: sicklecellanemianews.com
Feb 21, 2017

A multiple drug approach to preventing sickle cell crisis

Source: medicalxpress.com
Feb 1, 2017

World’s Largest Sickle Cell Disease Stem Cell Library Underway

Source: sicklecellanemianews.com
Jan 24, 2017

Step toward gene therapy for sickle cell disease

Source: www.sciencedaily.com
Nov 8, 2016

CRISPR deployed to combat sickle-cell anaemia

Source: www.nature.com
Oct 12, 2016

Methadone provides pain relief for kids with sickle cell

Source: medicalxpress.com
Oct 10, 2016

Effort set to help sickle cell patients manage meds

Source: news.vanderbilt.edu
Sep 22, 2016

Discovery could help treatments for sickle cell disease

Source: www.sciencedaily.com
Aug 8, 2016

Genetic Treatments for Sickle Cell

Source: www.scientificamerican.com
May 1, 2016

Sickle cell disease cure in sights of UAB Stem Cell Institute

Source: alabamanewscenter.com
Nov 13, 2015
38 resources available:

SCDAA 2023 National Abstract Competition

Source: www.sicklecelldisease.org
Jul 17, 2023

10th Annual Warriors Convention – Sickle Cell Community Consortium

Source: www.sicklecellconvention.org
Jul 18, 2023

Chief Patient Officer Summit

Source: www.dgevents.com
Jul 18, 2023

Sickle Cell Disease Camp – JWCF at RoundUp River Ranch

Source: roundupriverranch.org
Jul 24, 2023

2023 NHLBI Annual Sickle Cell Disease Research Meeting

Source: www.nhlbi.nih.gov
Aug 14, 2023

NHLBI Annual Sickle Cell Disease Research Meeting

Source: nhlbiworkshopsupport.certain.com
Aug 14, 2023

Class of 2021-2023 Graduation Book

Source: docs.google.com
Aug 25, 2023

Chiltern 50 Challenge

Source: www.ultrachallenge.com
Sep 23, 2023

6th Annual Chicago Sickle Cell Summit

Source: uic.zoom.us
Sep 28, 2023

Society of Pediatric Psychology Fall Virtual Conference

Source: pedpsych.org
Sep 29, 2023

Show Love, Give Blood for National Sickle Cell Awareness Month 2023

Source: sleevesup.redcrossblood.org
Sep 30, 2023

P.O.W.E.R ECHO Project Community Health Worker (CHW) Training

Source: www.sicklecelldisease.org
Oct 12, 2023

SCDF: BabySteps Parent Education Meeting

Source: hipaa.jotform.com
Nov 16, 2023

SCANJ: 11th Annual Statewide Sickle Cell Disease Symposium

Source: www.eventbrite.com
Nov 18, 2023

Sickle Cell Community-Wide Support & Empowerment Group (Nov)

Source: www.eventbrite.com
Nov 30, 2023

SCANJ Holiday Party North with Kenta Klaus

Source: www.eventbrite.com
Dec 14, 2023

SCANJ Holiday Party South with Kenta Klaus

Source: www.eventbrite.com
Dec 22, 2023

Sickle Cell Community-Wide Support & Empowerment Group (Dec)

Source: www.eventbrite.com
Dec 28, 2023

SCDAA Spring Community Health Worker Training

Source: chwtraining.sicklecelldisease.org
Mar 4, 2024

Virtual Sickle Cell Disease Policy Forum

Source: sickcells.org
Mar 19, 2024

5th Annual World Sickle Cell Day 24-Hour Sickle Cell-a-Thon

Source: www.sicklecellevents.org
Jun 19, 2024

SCDAA And MedicAlert Pilot Program Application

Source: www.medicalert.org
Aug 31, 2024
57 resources available:

Sickle Cell Cure Brings Mix of Anxiety and Hope

Source: www.nytimes.com
Jan 17, 2023

Regina Hartfield Is Now the CEO and President of SCDAA

Source: www.hcplive.com
Jan 15, 2022

Q&A With Regina Hartfield, New CEO of the SCDAA

Source: sicklecellanemianews.com
Dec 28, 2021

Sickle Cell Disease Association of America, Inc. Names New CEO & President

Source: www.sicklecelldisease.org
Dec 9, 2021

28-Year-old Sickle Cell Survivor Becomes Medical Doctor

Source: www.legit.ng
Feb 21, 2020

What It’s Like to Live With Sickle-Cell

Source: folks.pillpack.com
Jan 11, 2020

Sickle Cell Treatment ‘Life-Changing’ for Brockton Brothers

Source: www.bostonherald.com
Jan 28, 2019

Devin and Jason McCourty Honored by NFLPA for Community Work

Source: profootballtalk.nbcsports.com
Oct 26, 2018