Trusted Resources: News & Events
Latest announcements and gatherings
51 resources available:
Sickle Cell Disease Approvals Include First CRISPR Gene Editing Therapy
Source:
jamanetwork.com
Jan 3, 2024
An Ethical and Financial Obligation for Sickle Cell Disease Gene Therapy in the United States
Source:
www.acpjournals.org
Dec 5, 2023
SCDAA Teams with MedicAlert Foundation to Improve Emergency Outcomes During Sickle Cell Crises
Source:
www.sicklecelldisease.org
Jun 26, 2023
$100,000 Grant Allows National Expansion in Expert Care of Sickle Cell Patients
Source:
news.uthsc.edu
Nov 30, 2022
SCDAA Partners With Phi Beta Sigma Fraternity
Source:
www.sicklecelldisease.org
Mar 17, 2022
Sickle Cell Disease Association of America, Inc. and Hemanext® Inc. Form New Strategic Partnership
Source:
hemanext.com
May 6, 2021
Sickle Cell Disease: After Years of Neglect Some Promise for Sufferers
Source:
www.forbes.com
Feb 17, 2020
Novel Sickle Cell Drug Causes Radical Results in End of Life Patients
Source:
www.forbes.com
Nov 30, 2019
A new Sickle Cell Disease Drug Holds Much Promise but Most Sufferers Won’t be Able to Afford it
Source:
qz.com
Nov 26, 2019
FDA Approves Novel Treatment to Target Abnormality in Sickle Cell Disease
Source:
www.fda.gov
Nov 25, 2019
Global Sickle Cell Disease Treatment Market 2019–2023| Evolving Opportunities with ADDMEDICA and Bristol-Myers Squibb | Technavio
Source:
www.businesswire.com
Nov 22, 2019
FDA Approves First Targeted Therapy to Treat Patients with Painful Complication of Sickle Cell Disease
Source:
www.fda.gov
Nov 15, 2019
Pfizer Executive Outlines Vision for Treating Sickle Cell Disease, Other Rare Diseases
Source:
sicklecellanemianews.com
Apr 4, 2019
GBT launches ACCEL grants program to improve access to care for people with Sickle cell disease
Source:
globenewswire.com
Feb 19, 2019
Emmaus Life Sciences Launches Its Commercial Co-Payment Assistance Program for Endari™
Source:
www.prnewswire.com
Jan 28, 2019
Ghana Launches Partnership With Novartis to Improve Diagnosis and Treatment of People With Sickle Cell Disease
Source:
www.3blmedia.com
Jan 24, 2019
FDA agrees accelerated approval pathway for GBT’s voxelotor
Source:
ir.gbt.com
Dec 3, 2018
Sickle Cell Foundation Nigeria, Rhieos Develop 1st Multi-SCD Registry in Nigeria
Source:
www.vanguardngr.com
Nov 2, 2018
Emmaus, a leader in sickle cell disease treatment, signs agreement with Cardinal Health to solidify distribution network for Endari™ (L-glutamine oral powder)
Source:
www.businesswire.com
Sep 19, 2018
Siklos (hydroxyurea) now available through ProCare Pharmacy Care’s Siklos At Home program
Source:
www.prnewswire.com
Sep 12, 2018
Doris Duke Charitable Foundation awards grant to Critical Path Institute
Source:
www.eurekalert.org
Sep 6, 2018
Emmaus, a leader in sickle cell disease treatment, signs agreement with McKesson to expand distribution network for Endari™ (L-glutamine oral powder)
Source:
www.businesswire.com
Aug 27, 2018
GBT expands sickle cell disease pipeline with worldwide licensing agreement for inclacumab for the treatment of vaso-occlusive crisis
Source:
globenewswire.com
Aug 23, 2018
The Links, Incorporated presents million-dollar grant to St. Jude’s Hospital
Source:
fox2now.com
Jul 13, 2018
Novo Nordisk obtains licence for sickle cell disease program
Source:
www.nasdaq.com
Apr 6, 2018
California Institute For Regenerative Medicine Awards City Of Hope $5.74 Million For Severe Sickle Cell Disease Clinical Trial
Source:
www.businesswire.com
Mar 2, 2018
University of Illinois at Chicago awarded $4.6 million NIH grant for chronic pain research
Source:
www.news-medical.net
Feb 26, 2018
California’s Stem Cell Agency Invests in Stem Cell-Based Therapies Targeting Sickle Cell Disease and Cancer
Source:
www.cirm.ca.gov
Feb 22, 2018
Sickle Cell Disease Association of America, Inc. Awards Community Based Organizations With $2,033,080 for Newborn Screening Follow-Up Program
Source:
www.sicklecelldisease.org
Feb 20, 2018
Ex-rutgers stars Devin and Jason McCourty top $1M in fundraising for charity
Source:
www.nj.com
Feb 19, 2018
Emmaus Medical, Inc. Selects AmerisourceBergen to Support the Launch of EndariTM (L-glutamine oral powder)
Source:
www.businesswire.com
Feb 9, 2018
Bluebird bio acquires Durham, NC, manufacturing site for lentiviral vector production
Source:
www.genengnews.com
Nov 29, 2017
Cydan Raises $34M to Advance New Therapies for Sickle Cell, Other Rare Diseases
Source:
sicklecellanemianews.com
Oct 24, 2017
FDA Awards UNC Researcher $2M Grant to Study Kidney Disease in Sickle Cell Anemia
Source:
sicklecellanemianews.com
Oct 12, 2017
Matthew Porteus awarded grant for sickle cell anemia work
Source:
med.stanford.edu
Oct 3, 2017
DDCF Awards $6 Million for Sickle Cell Disease Research
Source:
philanthropynewsdigest.org
Sep 23, 2017
PCORI Board Approves $18 Million for Research on Sickle Cell Disease
Source:
sicklecellanemianews.com
Sep 21, 2017
Bioverativ and Bicycle Therapeutics Enter into Strategic Research Collaboration to Develop Therapies for Hemophilia and Sickle Cell Disease
Source:
www.businesswire.com
Sep 6, 2017
CSL Behring to Acquire Biotech Company Calimmune and its Proprietary Stem Cell Gene Therapy Platform
Source:
www.prnewswire.com
Aug 28, 2017
Gamida Cell Announces $3.5 Million Grant from the Israeli Government
Source:
www.prnewswire.com
Jul 20, 2017
Sickle Cell Disease Association of America, Inc. Awarded $11.6 Million Continuation Grant from the Health Resources & Services Administration
Source:
sicklecellanemianews.com
Jun 20, 2017
GlycoMimetics Announces Pricing of Public Offering of Common Stock
Source:
www.businesswire.com
May 24, 2017
Apheresis Equipment Market is expected to reach USD 3.7 billion by 2024
Source:
www.prnewswire.com
May 22, 2017
Global HOPE Initiative Plans $100M Pediatric Hematology-Oncology Treatment Network in Africa
Source:
sicklecellanemianews.com
Feb 28, 2017
U.S. Government Awards Missouri Researcher $4.3 Million to Study Sickle Cell in Teens, Adults
Source:
sicklecellanemianews.com
Feb 9, 2017
Exemplar Genetics Awarded Subcontract to Advance New Therapeutic Models for Sickle Cell Disease
Source:
www.prnewswire.com
Jan 26, 2017
Calimmune Expands Lentiviral Gene Therapy Pipeline Through License of Sickle Cell Disease Therapeutic Candidate
Source:
www.businesswire.com
Dec 5, 2016
Novartis acquires US pharma research firm Selexys Pharmaceuticals
Source:
medicalxpress.com
Nov 21, 2016
183 resources available:
The CRISPR Era Is Here
Source:
www.theatlantic.com
Nov 28, 2023
Vaso-Occlusive Crisis: The Future of Treating Patients With Sickle Cell Disease in Emergency Departments
Source:
www.hcplive.com
Dec 30, 2022
Corinna Schultz, MD, Shares How Pediatricians Can Discuss Sickle Cell Trait With Patients, Families
Source:
www.hcplive.com
Dec 29, 2022
From Early Hypothesis to Clinical Data About Reducing Vaso-Occlusive Episodes with Arginine Therapy
Source:
www.hcplive.com
Dec 22, 2022
Corinna Schultz, MD: Does Sickle Cell Trait Get Discussed?
Source:
www.hcplive.com
Dec 13, 2022
Claudia Morris, MD, Uncovers Potential New Mechanism of Action for Hydroxyurea
Source:
www.hcplive.com
Dec 12, 2022
Arginine Therapy Shows Positive Impacts on Sickle Cell Disease in ASH 2022 Data
Source:
www.hcplive.com
Dec 10, 2022
MARAC Statement on Influenza, National Shortage of Oseltamivir (Tamiflu) and the Influenza Vaccine
Source:
www.sicklecelldisease.org
Dec 6, 2022
Serious Gum Disease With Sickle Cell May Lead to Repeat Pain Crises
Source:
sicklecellanemianews.com
Nov 29, 2022
Lab-Grown Blood: What Is It, and How Could It Be Useful?
Source:
www.medicalnewstoday.com
Nov 11, 2022
MARAC Encourages Clinical Research Studies
Source:
www.sicklecelldisease.org
Oct 19, 2022
Evaluation of Ovarian Reserve, Aging and Fertility Preservation in Women With Sickle Cell Disease
Source:
www.stanfordchildrens.org
Feb 23, 2022
SCDAA News Advisory: Partial Hold on Gene Therapy Trial
Source:
www.sicklecelldisease.org
Dec 20, 2021
Gene therapy may help cure sickle cell disease, study says
Source:
www.upi.com
Dec 14, 2021
Experimental Gene Therapy Reverses Sickle Cell Disease for Years
Source:
www.cuimc.columbia.edu
Dec 13, 2021
CTX001 Continues to Show Promise in Severe SCD
Source:
sicklecellanemianews.com
Jul 8, 2021
MARAC Advisory Statement: Gene Therapy & Bone Marrow Therapies
Source:
www.sicklecelldisease.org
May 15, 2021
Statement on NHLBI Decision to Pause the Pilot and Feasibility Study of Hematopoietic Stem Cell Gene Transfer for Sickle Cell Disease
Source:
www.nhlbi.nih.gov
Feb 16, 2021
FDA Clears Graphite Bio to Begin Trial for Gene Therapy in Sickle Cell Disease
Source:
www.ashclinicalnews.org
Dec 20, 2020
SCD Patients Benefit From Early Rivipansel Treatment for VOCs, New Analyses Show
Source:
sicklecellanemianews.com
Dec 8, 2020
Gene-Editing Treatment Shows Promise for Sickle Cell Disease
Source:
www.nbcnews.com
Dec 7, 2020
Orphan Drug Designation Granted for CSL Behring’s Investigational Plasma-Derived Hemopexin Therapy for Sickle Cell Disease
Source:
www.prnewswire.com
Nov 2, 2020
Gut Microbiome Translates Stress Into Sickle Cell Crises
Source:
medicaldialogues.in
Aug 4, 2020
Bluebird Bio Presents Data From LentiGlobin Gene Therapy Trial
Source:
sicklecellanemianews.com
Jun 16, 2020
Partnership to Ensure Supply of LentiGlobin, Potential Gene Therapy
Source:
sicklecellanemianews.com
May 21, 2020
Expert Opinion Hydroxyurea Could Prevent Strokes for People With Sickle Cell Disease in Lieu of Transfusions During COVID-19 Blood Supply Shortage
Source:
www.hematology.org
Apr 13, 2020
At 16, She’s a Pioneer in the Fight to Cure Sickle Cell Disease
Source:
www.nytimes.com
Jan 11, 2020
A Teenager’s Breakthrough Gene Therapy for Sickle Cell Disease
Source:
www.nytimes.com
Jan 10, 2020
ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies
Source:
www.streetinsider.com
Dec 6, 2019
Gene-Edited ‘Supercells’ Make Progress In Fight Against Sickle Cell Disease
Source:
www.npr.org
Nov 19, 2019
FDA Awards $2M to Phase 2 Trial of Vitamin D for Reducing Risk of SCD Respiratory Complications
Source:
sicklecellanemianews.com
Oct 10, 2019
Phase 3 Trial of Rivipansel in Treating SCD Pain Crisis Fails to Meet Goals, Pfizer Announces
Source:
sicklecellanemianews.com
Aug 6, 2019
Sickle cell trait may not increase the risk of death
Source:
www.washingtonpost.com
Aug 4, 2019
Sickle Cell Patient Receives CRISPR Gene Therapy
Source:
www.labroots.com
Jul 30, 2019
In A 1st, Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder
Source:
www.npr.org
Jul 29, 2019
Non-Invasive Prenatal Screening Test for Sickle Cell Appears Possible, Study Reports
Source:
sicklecellanemianews.com
Jul 11, 2019
UH Researcher Reports the Way Sickle Cells Form May Be Key to Stopping Them
Source:
uh.edu
Jul 2, 2019
Investigational Oral Inhibitor IMR-687 Shows Promising Results in Ongoing Phase 2 Clinical Trial
Source:
sicklecellanemianews.com
Jun 25, 2019
Cognitive Function may be Affected in Adults With Sickle Cell Disease, Study Suggests
Source:
sicklecellanemianews.com
May 14, 2019
More Online Queries in Winter Suggest Seasonal Variations in SCD Activity
Source:
sicklecellanemianews.com
Apr 25, 2019
More Curative Bone Marrow Transplants are Successful When Patients Given Double the Radiation Beforehand, Study Says
Source:
sicklecellanemianews.com
Mar 21, 2019
Johns Hopkins researchers offer new protocol to potentially cure sickle cell disease
Source:
www.wbaltv.com
Mar 20, 2019
Big Jump in Success for Sickle Cell Transplants
Source:
www.medpagetoday.com
Mar 15, 2019
Could Gene Therapy Cure Sickle Cell Anemia?
Source:
www.cbsnews.com
Mar 10, 2019
Differences in Brain Oxygen Supply May Explain Silent Strokes in SCD Patients
Source:
sicklecellanemianews.com
Mar 5, 2019
Patients With Sickle Cell Disease may Have Lower Risk for C. Difficile
Source:
www.healio.com
Feb 27, 2019
Spectra Optia Device Save Way to Treat Sickle Cell While Using Less Blood Cell Packs, Study Finds
Source:
sicklecellanemianews.com
Feb 19, 2019
Kids With Sickle Cell Anemia are More Sedentary Than Healthy Peers, Study Suggests
Source:
sicklecellanemianews.com
Jan 31, 2019
Virtual Reality Helps Reduce Pain Among Patients With Sickle Cell Disease
Source:
www.healio.com
Jan 30, 2019
These patients had sickle-cell disease. Experimental therapies might have cured them
Source:
www.nytimes.com
Jan 27, 2019
Vaso-Occlusive Pain Linked to Menstruation in Some Patients, Study Finds
Source:
sicklecellanemianews.com
Jan 24, 2019
Safety and early hints of benefit seen in phase 1b trial of PF-04447943
Source:
sicklecellanemianews.com
Jan 22, 2019
Randomized Trials Needed to Assess Benefits of Salmonella Vaccines in SCD Patients, Study Says
Source:
sicklecellanemianews.com
Jan 15, 2019
Toronto Neuroscientist Getting Closer to Tailored Treatments for Chronic Pain
Source:
www.cbc.ca
Jan 14, 2019
Crizanlizumab designated FDA breakthrough therapy for potential in vaso-occlusive crisis prevention
Source:
sicklecellanemianews.com
Jan 10, 2019
CTX001 Earns FDA’s Fast Track Status for Treating Sickle Cell Disease
Source:
sicklecellanemianews.com
Jan 7, 2019
FDA grants CRISPR gene therapy fast track designation for sickle cell disease
Source:
www.healio.com
Jan 4, 2019
Hospitals See No Link Between US Opioid Crisis and Patients’ Use of Treatment, Study Reports
Source:
sicklecellanemianews.com
Jan 3, 2019
ASH launches sickle cell disease clinical trials network to accelerate therapy development
Source:
www.healio.com
Dec 31, 2018
Boston Children’s Hospital receives grant for sickle cell disease research
Source:
www.healio.com
Dec 30, 2018
LentiGlobin Shows Positive Effects in Severe Sickle Cell Disease Patients, Phase 1/2 Data Reports
Source:
sicklecellanemianews.com
Dec 18, 2018
Gene therapy targets sickle-cell disease
Source:
www.nature.com
Dec 12, 2018
Voxelotor can Promote Long-Term Benefits in Teens, Adults With SCD, Latest Clinical Data Show
Source:
sicklecellanemianews.com
Dec 11, 2018
Study Confirms Safe Use of Opioids for Pain Control in Sickle Cell Disease
Source:
www.ajmc.com
Dec 10, 2018
Inexpensive sickle cell diagnostic tool shows perfect accuracy in Uganda
Source:
www.healio.com
Dec 5, 2018
Early clinical trial data show gene therapy reversing sickle cell anemia
Source:
www.sciencedaily.com
Dec 4, 2018
Gene therapies could transform the treatment of sickle cell disease
Source:
www.washingtonpost.com
Dec 3, 2018
School staff lacks knowledge about sickle cell disease, student survey finds
Source:
sicklecellanemianews.com
Nov 13, 2018
Phase 1 trial to test under-the-skin injection of sevuparin in sickle cell patients
Source:
sicklecellanemianews.com
Nov 8, 2018
Research Team Recognized for Organ-on-a-Chip Design
Source:
engineering.tamu.edu
Nov 8, 2018
Marijuana use common in sickle cell patients, highlighting need for more research, study shows
Source:
sicklecellanemianews.com
Oct 23, 2018
Crizanlizumab lowers pain crises in at-risk sickle cell patients, ad-hoc trial data show
Source:
sicklecellanemianews.com
Oct 18, 2018
Sickle cell patients in UK survey, especially those 16 to 20, voice problems with care and pain relief given
Source:
sicklecellanemianews.com
Sep 18, 2018
American Society of Hematology to launch sickle cell disease clinical trials network
Source:
markets.businessinsider.com
Sep 12, 2018
How sickled red blood cells stick to blood vessels
Source:
news.mit.edu
Sep 3, 2018
Grant Recipient Uses Mobile Device Observation in Sickle Cell Pain Study
Source:
www.fwgbd.org
Aug 24, 2018
Sickle Cell Treatments can Destroy Germ Cells in Boys, Affecting Fertility in Adulthood, Study Suggests
Source:
sicklecellanemianews.com
Aug 14, 2018
Mount Sinai receives NIH grant to study use of inhaled corticosteroids for sickle cell treatment
Source:
www.eurekalert.org
Aug 13, 2018
L-glutamine Oral Powder Significantly Reduces Acute Complications of Sickle Cell Disease
Source:
www.hcplive.com
Aug 4, 2018
Endari reduces pain crises, hospitalizations in sickle cell patients, phase 3 trial shows
Source:
sicklecellanemianews.com
Jul 26, 2018
Researchers raise funds for phase 1 trial to test medical cannabis in sickle cell disease
Source:
sicklecellanemianews.com
Jul 17, 2018
Music therapy helps relieve pain in adults with sickle cell disease, pilot trial suggests
Source:
sicklecellanemianews.com
Jul 11, 2018
GBT announces positive top-line data from part A of the phase 3 HOPE study of Voxelotor in sickle cell disease
Source:
www.globenewswire.com
Jun 27, 2018
Potential treatment targeting nitric oxide levels, olinciguat, named orphan drug by FDA
Source:
sicklecellanemianews.com
Jun 13, 2018
Global Blood Therapeutics (GBT) announces upcoming data presentations supporting Voxelotor SCD program
Source:
www.streetinsider.com
Jun 8, 2018
Ironwood Pharmaceuticals Announces FDA Orphan Drug Designation for Olinciguat for the Treatment of Sickle Cell Disease
Source:
www.businesswire.com
Jun 7, 2018
Gene-Therapy Company Crispr Drops as FDA Puts Trial on Hold
Source:
www.bloomberg.com
May 31, 2018
Kids with sickle cell disease aren’t receiving key vaccines, Michigan study finds
Source:
sicklecellanemianews.com
May 29, 2018
Stigmatizing language in medical records affects patient care, study shows
Source:
sicklecellanemianews.com
May 15, 2018
Sickle Cell Groups, Pfizer Work to Bring African-Americans into Clinical Trials
Source:
sicklecellanemianews.com
May 3, 2018
Sickle cell trait may not contribute to stroke risk
Source:
www.genomeweb.com
Apr 23, 2018
Is Caregiver Education About Sickle Cell Trait Effective?
Source:
www.newswise.com
Apr 17, 2018
Healthy red blood cells owe their shape to muscle-like structures
Source:
www.sciencedaily.com
Apr 4, 2018
Solution to 50-year-old mystery could lead to gene therapy for common blood disorders
Source:
newsroom.unsw.edu.au
Apr 3, 2018
FDA Approves Hydroxyurea Tablets for Pediatric Patients With Sickle Cell Anemia
Source:
www.hcplive.com
Mar 15, 2018
ADDMEDICA receives FDA-approval for orphan drug Siklos®, first and sole hydroxyurea-based treatment for paediatric patients with sickle cell anaemia
Source:
www.businesswire.com
Mar 15, 2018
How One Child’s Sickle Cell Mutation Helped Protect the World From Malaria
Source:
www.nytimes.com
Mar 8, 2018
Clinical trial offers hope to adults with sickle cell disease
Source:
www.myajc.com
Mar 6, 2018
The impact of rare disease on family caregivers
Source:
www.prweb.com
Feb 28, 2018
Gamida Cell to Present Data from NiCord® Programs at the 2018 BMT Tandem Meetings
Source:
www.businesswire.com
Feb 20, 2018
Kids Who Need Sickle Cell Meds Don’t Always Get Them
Source:
health.usnews.com
Feb 16, 2018
Progress in pursuit of sickle cell cure
Source:
www.sciencedaily.com
Feb 16, 2018
First Sickle Cell Patient Dosed in Phase 2a of IMR-687
Source:
www.hcplive.com
Feb 14, 2018
Hypersensitivity to Allergens May Increase Risk of Acute Chest Syndrome in Sickle Cell Anemia Children
Source:
sicklecellanemianews.com
Feb 8, 2018
University researchers develop more complete model of sickle cell
Source:
www.browndailyherald.com
Feb 6, 2018
Hydroxyurea Treatment in Men with SCA Leads to Drop in Total Sperm Count, Study Shows
Source:
sicklecellanemianews.com
Feb 1, 2018
Sickle Cell Treatment Endari Now Available in the United States
Source:
www.hcplive.com
Jan 18, 2018
GBT Receives FDA Breakthrough Therapy Designation for Voxelotor for Treatment of Sickle Cell Disease (SCD)
Source:
globenewswire.com
Jan 9, 2018
La Jolla Pharmaceutical company announces initiation of pivotal clinical study of LJPC-401 in patients with beta thalassemia
Source:
globenewswire.com
Dec 4, 2017
Emmaus Life Sciences, Inc. to present results of phase 3 study of endariTM (L-glutamine oral powder) at 59th American Society of Hematology annual meeting
Source:
www.businesswire.com
Nov 28, 2017
Review Board Finds Global Blood’s Sickle Cell Disease Therapy Voxelotor Is Safe
Source:
sicklecellanemianews.com
Nov 21, 2017
Sickle cell patient with severe anemia rapidly improves with voxelotor, case study shows
Source:
sicklecellanemianews.com
Nov 14, 2017
Alzheimer’s Treatment Memantine Shows Promise in Treating Sickle Cell Disease
Source:
sicklecellanemianews.com
Nov 9, 2017
Investigational Therapy Altemia Achieves Main Endpoints in Pediatric Sickle Cell Trial
Source:
sicklecellanemianews.com
Nov 7, 2017
Georgia Universities Join NIH-funded National Study of Bone Marrow Transplant for SCD
Source:
sicklecellanemianews.com
Oct 31, 2017
Hydroxyurea linked to ‘significant, rapid’ reduction of sperm count
Source:
www.healio.com
Oct 30, 2017
SCA Therapy Hydroxyurea Doesn’t Boost Malaria Risk in Sub-Saharan Africa, Study Finds
Source:
sicklecellanemianews.com
Oct 26, 2017
Fighting sickle cell disease by looking back to babyhood
Source:
academicdepartments.musc.edu
Oct 6, 2017
National Sickle Cell Disease Poll of African Americans Dispels Long-Held Views
Source:
www.businesswire.com
Sep 21, 2017
Imara Reports Favorable Preclinical and Phase 1 Data on IMR-687 in Sickle Cell Disease
Source:
www.businesswire.com
Sep 14, 2017
Computer models provide new understanding of sickle cell disease
Source:
news.brown.edu
Jul 28, 2017
‘Natural’ Gene Mutation May Offer Way of Treating Sickle Cell Disease, Study Says
Source:
sicklecellanemianews.com
Jul 27, 2017
Quest Diagnostics Launches Genetic Test to Assess Risk for Sickle Cell Anemia, Other Inherited Disorders
Source:
sicklecellanemianews.com
Jul 20, 2017
FDA Approves Glutamine Powder for Sickle Cell Disease
Source:
www.fda.gov
Jul 7, 2017
Researchers Identify Genetic Predictors of Sickle Cell Anemia-Related Complications
Source:
sicklecellanemianews.com
Jul 6, 2017
Global Blood Therapeutics Receives EMA PRIME Designation for GBT440 for the Treatment of Sickle Cell Disease (SCD)
Source:
globenewswire.com
Jun 28, 2017
Chip-based Models Mimic Organs to Advance Understanding of Sickle Cell Disease
Source:
sicklecellanemianews.com
Jun 27, 2017
Small chips, big impact: MSU researcher studies cardiovascular, sickle cell disease
Source:
www.msstate.edu
Jun 22, 2017
ASH to develop clinical guidelines to improve care for people with sickle cell disease
Source:
www.prnewswire.com
Jun 19, 2017
Only 21% of Kids with ADHD and SCD Are Treated for Attention Deficit
Source:
sicklecellanemianews.com
Jun 8, 2017
New Pre-transplant Treatment Regimen Improves Survival of Kids with Sickle Cell Disease, Trial Shows
Source:
sicklecellanemianews.com
Jun 6, 2017
Researchers Develop Test for SCA to be Used in Low-Resource Settings
Source:
sicklecellanemianews.com
Jun 1, 2017
Multidisciplinary Care Team Greatly Reduces Risk in Pregnant SCD Patients in Low-income Countries
Source:
sicklecellanemianews.com
May 25, 2017
FDA Advisory Committee Recommends Approval of Endari™ from Emmaus Life Sciences for the Treatment of Sickle Cell Disease
Source:
www.prnewswire.com
May 24, 2017
New Method of Creating Healthy Stem Cells Could Potentially Improve Treatment of Sickle Cell Anemia
Source:
sicklecellanemianews.com
May 18, 2017
Imara’s IMR-687 for SCD Receives FDA Rare Pediatric Disease Designation
Source:
sicklecellanemianews.com
May 16, 2017
Phase 3 Trial Recruiting to Test Rivipansel for Vaso-Occlusive Crisis in SCD
Source:
sicklecellanemianews.com
May 11, 2017
Sickle Cell Disease and Its Toll Compared in Different Age Groups in Study
Source:
sicklecellanemianews.com
May 9, 2017
Prolong Pharma’s Sanguinate Shows Promise in Reverting Shape of Red Blood Cells in SCD
Source:
sicklecellanemianews.com
May 4, 2017
New Research Suggests SANGUINATE™ Reduces the Number of Sickled Red Blood Cells in Patients with Vaso-Occlusive Crisis
Source:
www.prnewswire.com
May 2, 2017
MaxCyte, Inc. to Present Positive Preclinical Data for Sickle Cell Disease
Source:
www.prnewswire.com
Apr 25, 2017
First systemic evidence for safety of tPA in stroke patients with sickle cell disease
Source:
www.sciencedaily.com
Apr 11, 2017
Young Sickle Cell Patients Who Don’t Take Medication Have Lower Quality of Life
Source:
sicklecellanemianews.com
Mar 21, 2017
Older Blood Used in Transfusions May Be Harmful to Adult Sickle Cell Patients, Review Finds
Source:
sicklecellanemianews.com
Mar 16, 2017
Sickle cell gene linked to elevated risk of developing kidney failure
Source:
www.sciencedaily.com
Mar 10, 2017
In France, Boy Becomes First Sickle Cell Disease Patient to be Treated With Gene Therapy
Source:
sicklecellanemianews.com
Mar 7, 2017
Sickle Cell Anemia Toddlers Benefit from Maximal Hydroxyurea Doses, Study Finds
Source:
sicklecellanemianews.com
Mar 2, 2017
bluebird bio Announces Publication of Case Study on First Patient with Severe Sickle Cell Disease Treated with Gene Therapy in The New England Journal of Medicine
Source:
www.businesswire.com
Mar 1, 2017
Study Suggests Ways of Improving Newborn Screening for Sickle Cell Disease
Source:
sicklecellanemianews.com
Feb 21, 2017
Sickle cell trait may confound blood sugar readings among African-Americans
Source:
medicalxpress.com
Feb 7, 2017
A multiple drug approach to preventing sickle cell crisis
Source:
medicalxpress.com
Feb 1, 2017
World’s Largest Sickle Cell Disease Stem Cell Library Underway
Source:
sicklecellanemianews.com
Jan 24, 2017
Diabetes Drug, Metformin, Suggested as ‘Breakthrough’ Treatment for Sickle Cell Anemia
Source:
sicklecellanemianews.com
Jan 12, 2017
SPCI Launched the SCOT (Sickle Cell Omega-3 Treatment) Trial in the United States with an Investigator Meeting Held December 16-17 in Atlanta
Source:
www.businesswire.com
Dec 19, 2016
SUSTAIN Clinical Trial Results Show Crizanlizumab Reduced Sickle Cell–Related Pain Crises
Source:
sicklecellanemianews.com
Dec 13, 2016
Sickle Cell Disease Research Shows Progress in Preventing Related Complications and Death
Source:
www.prnewswire.com
Dec 3, 2016
Step toward gene therapy for sickle cell disease
Source:
www.sciencedaily.com
Nov 8, 2016
Stem cell gene-editing method may be breakthrough for sickle cell research
Source:
sicklecellanemianews.com
Nov 3, 2016
Environmental, genetic factors may predict longevity in sickle cell disease
Source:
www.healio.com
Oct 17, 2016
CRISPR deployed to combat sickle-cell anaemia
Source:
www.nature.com
Oct 12, 2016
Methadone provides pain relief for kids with sickle cell
Source:
medicalxpress.com
Oct 10, 2016
Rare patients with sickle cell disease live nearly twice national average
Source:
medicalxpress.com
Oct 4, 2016
Effort set to help sickle cell patients manage meds
Source:
news.vanderbilt.edu
Sep 22, 2016
BCL11A-based gene therapy for sickle cell disease passes key preclinical test
Source:
medicalxpress.com
Sep 6, 2016
Researchers ID key drivers of heart complications in sickle cell anemia
Source:
www.sciencedaily.com
Aug 9, 2016
Discovery could help treatments for sickle cell disease
Source:
www.sciencedaily.com
Aug 8, 2016
Study challenges view that sickle cell trait increases mortality risk
Source:
med.stanford.edu
Aug 3, 2016
Pregnant Women with Sickle Cell Disease, Especially SS-type, at Risk of Complications
Source:
sicklecellanemianews.com
Jul 18, 2016
Long-term opioids may not be best pain management option for all sickle cell patients
Source:
www.sciencedaily.com
Jun 20, 2016
Hydroxyurea improves lung function in children with sickle cell disease
Source:
medicalxpress.com
May 18, 2016
Genetic Treatments for Sickle Cell
Source:
www.scientificamerican.com
May 1, 2016
Pediatric sickle cell study stopped early due to positive results
Source:
medicalxpress.com
Jan 4, 2016
New Sickle Cell Disease Research Shows Improved Patient Outcomes
Source:
www.prnewswire.com
Dec 6, 2015
Sickle cell disease cure in sights of UAB Stem Cell Institute
Source:
alabamanewscenter.com
Nov 13, 2015
100 Years But Only One Drug: Sickle Cell Patients Wait For Help
Source:
www.xconomy.com
Aug 18, 2015
Black Americans With Sickle Cell Trait At Increased Risk Of Kidney Disease
Source:
www.huffingtonpost.com
Nov 13, 2014
38 resources available:
SCDAA 2023 National Abstract Competition
Source:
www.sicklecelldisease.org
Jul 17, 2023
10th Annual Warriors Convention – Sickle Cell Community Consortium
Source:
www.sicklecellconvention.org
Jul 18, 2023
Chief Patient Officer Summit
Source:
www.dgevents.com
Jul 18, 2023
Sickle Cell Disease Camp – JWCF at RoundUp River Ranch
Source:
roundupriverranch.org
Jul 24, 2023
2023 NHLBI Annual Sickle Cell Disease Research Meeting
Source:
www.nhlbi.nih.gov
Aug 14, 2023
NHLBI Annual Sickle Cell Disease Research Meeting
Source:
nhlbiworkshopsupport.certain.com
Aug 14, 2023
SCDAA Masterclass Speaker Series: All Things Considered – SCD Treatment: A Personal Choice
Source:
docs.google.com
Aug 24, 2023
Class of 2021-2023 Graduation Book
Source:
docs.google.com
Aug 25, 2023
Cayenne Wellness Center’s 15th Annual Sickle Cell Disease Educational Summit
Source:
cayennewellness.org
Sep 13, 2023
10th Annual Walk with the Stars – Sickle Cell Disease Association of America, Inc.
Source:
charity.pledgeit.org
Sep 16, 2023
Congressional Briefing: Comprehensive Sickle Cell Disease Care in a Time of Innovation
Source:
www.sicklecelldisease.org
Sep 20, 2023
Chiltern 50 Challenge
Source:
www.ultrachallenge.com
Sep 23, 2023
6th Annual Chicago Sickle Cell Summit
Source:
uic.zoom.us
Sep 28, 2023
Society of Pediatric Psychology Fall Virtual Conference
Source:
pedpsych.org
Sep 29, 2023
Show Love, Give Blood for National Sickle Cell Awareness Month 2023
Source:
sleevesup.redcrossblood.org
Sep 30, 2023
Annual National Sickle Cell Disease Association of America (SCDAA) Convention
Source:
web.cvent.com
Oct 11, 2023
P.O.W.E.R ECHO Project Community Health Worker (CHW) Training
Source:
www.sicklecelldisease.org
Oct 12, 2023
Sickle Cell Community Consortium: Mental Health & Wellness Initiative
Source:
www.facebook.com
Oct 19, 2023
Clinical Trials 101: Everything You Need to Know to Get Started – Somebody To Talk To Zoom Session
Source:
us06web.zoom.us
Oct 25, 2023
SCDF: BabySteps Parent Education Meeting
Source:
hipaa.jotform.com
Nov 16, 2023
SCANJ: 11th Annual Statewide Sickle Cell Disease Symposium
Source:
www.eventbrite.com
Nov 18, 2023
Sickle Cell Community-Wide Support & Empowerment Group (Nov)
Source:
www.eventbrite.com
Nov 30, 2023
Minority Health Counts: Building a More Equitable Community Summit
Source:
www.eventbrite.com
Dec 2, 2023
65th American Society of Hematology (ASH) Annual Meeting & Exposition
Source:
www.hematology.org
Dec 9, 2023
Sickle Cell Foundation of Palm Beach County & Treasure Coast Sickle Cell-ebration Awareness Walk 2023
Source:
www.sicklecellpbc.org
Dec 9, 2023
SCANJ Holiday Party North with Kenta Klaus
Source:
www.eventbrite.com
Dec 14, 2023
Sickle Cell Community Consortium: Sickle Cell Holiday Expo 2023
Source:
events.zoom.us
Dec 15, 2023
SCANJ Holiday Party South with Kenta Klaus
Source:
www.eventbrite.com
Dec 22, 2023
Sickle Cell Community-Wide Support & Empowerment Group (Dec)
Source:
www.eventbrite.com
Dec 28, 2023
SCDAA Spring Community Health Worker Training
Source:
chwtraining.sicklecelldisease.org
Mar 4, 2024
Virtual Sickle Cell Disease Policy Forum
Source:
sickcells.org
Mar 19, 2024
P.O.W.E.R ECHO Project Community Health Worker (CHW) Training – 3/21/24
Source:
echo.zoom.us
Mar 21, 2024
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
Source:
www.sicklecellevents.org
Apr 10, 2024
P.O.W.E.R ECHO Project Community Health Worker (CHW) Training – 4/18/24
Source:
echo.zoom.us
Apr 18, 2024
P.O.W.E.R ECHO Project Community Health Worker (CHW) Training – 5/19/24
Source:
echo.zoom.us
May 9, 2024
5th Annual World Sickle Cell Day 24-Hour Sickle Cell-a-Thon
Source:
www.sicklecellevents.org
Jun 19, 2024
SCDAA And MedicAlert Pilot Program Application
Source:
www.medicalert.org
Aug 31, 2024
4th Annual Virtual Caregivers Summit – Sickle Cell Community Consortium
Source:
www.scdcaregivers.org
Nov 14, 2024
57 resources available:
Sickle Cell Cure Brings Mix of Anxiety and Hope
Source:
www.nytimes.com
Jan 17, 2023
Sickle Cell Management During the Blood Crisis With Edward Ivy, MD, MPH
Source:
www.hcplive.com
Jan 20, 2022
Edward Ivy, MD, MPH: A Comprehensive Perspective on Sickle Cell Disease
Source:
www.hcplive.com
Jan 20, 2022
Regina Hartfield Is Now the CEO and President of SCDAA
Source:
www.hcplive.com
Jan 15, 2022
Q&A With Regina Hartfield, New CEO of the SCDAA
Source:
sicklecellanemianews.com
Dec 28, 2021
Sickle Cell Disease Association of America, Inc. Names New CEO & President
Source:
www.sicklecelldisease.org
Dec 9, 2021
These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes
Source:
www.nytimes.com
May 23, 2021
Nobel Prize Spotlights Sickle Cell’s Disproportionate Impact on African Americans
Source:
www.diverseeducation.com
Dec 1, 2020
Ron Cook: James Franklin Bracing for ‘Heartache’ of College Football Season
Source:
www.post-gazette.com
Jul 1, 2020
Sister of Illinois’ first coronavirus victim also dies from virus. Quarantine prevents family from mourning together.
Source:
www.chicagotribune.com
Mar 27, 2020
Patricia Frieson was more than the 1st COVID-19 death in Illinois. She was their sister.
Source:
chicago.suntimes.com
Mar 18, 2020
28-Year-old Sickle Cell Survivor Becomes Medical Doctor
Source:
www.legit.ng
Feb 21, 2020
‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From Illness
Source:
www.chicagotribune.com
Jan 31, 2020
What It’s Like to Live With Sickle-Cell
Source:
folks.pillpack.com
Jan 11, 2020
Sickle cell disease is complex on its own, but black men with the illness battle its stigmas and stereotypes too
Source:
www.chicagotribune.com
Dec 30, 2019
Too many children live too far from sickle cell treatment they need
Source:
www.ajc.com
Nov 28, 2019
WNY Girl Gets First Pediatric Bone Marrow Transplant for Sickle Cell in Buffalo
Source:
www.wgrz.com
Sep 26, 2019
Students With Sickle Cell Disease Stay on Track With Help From St. Louis Children’s Hospital
Source:
www.stltoday.com
May 21, 2019
Dr. Doris Wethers, 91, on Front Lines against Sickle Cell, Dies
Source:
www.nytimes.com
Feb 7, 2019
Sickle Cell Treatment ‘Life-Changing’ for Brockton Brothers
Source:
www.bostonherald.com
Jan 28, 2019
Surprise of a lifetime: Devin McCourty gives away two Super Bowl LIII tickets
Source:
www.cbsnews.com
Jan 18, 2019
McCourty twins praise aunt who lost battle with sickle cell disease for ‘defying the odds’
Source:
www.boston.com
Jan 6, 2019
The ‘Voice of Lagos’ is silent: Entertainer Tosyn Bucknor dies at 37
Source:
www.cnn.com
Nov 20, 2018
Devin and Jason McCourty Honored by NFLPA for Community Work
Source:
profootballtalk.nbcsports.com
Oct 26, 2018
Jordin Sparks Wants You to Know Your Sickle Cell Status
Source:
twitter.com
Oct 15, 2018
Williams excels on soccer field while playing with sickle cell trait
Source:
www.gwhatchet.com
Sep 17, 2018
Matteson girl, 8, with sickle cell hosts party, blood drive to help others
Source:
abc7chicago.com
Sep 16, 2018
Charlotte 13-Year-Old With Sickle Cell Plays Lead Role in Broadway’s ‘Lion King’
Source:
www.wsoctv.com
Aug 23, 2018
Family of late MMA fighter Rondel Clark starts foundation to raise awareness about extreme weight cutting
Source:
www.mmafighting.com
Aug 16, 2018