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Whether you’re a first-time visitor or someone already well familiar with our growing collection of the best and most trustworthy sickle cell disease resources from across the web, there’s a lot more to oneSCDvoice. But it’s exclusively available to our registered members. Registering as a member is quick and easy, and best of all, it’s FREE. We hope you’ll jump in and explore all that oneSCDvoice has to offer.
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| Visitor | Member | |
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| Access to Trusted Resources & SCD Education sections |  |
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| Access to Social Wall (Community Discussion) |  |
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| SCDteams Private Groups | |
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| Direct Messaging | |
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| Weekly Activity E-mails | |
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| Bookmarking of Resources & Conversations | |
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| Customized Member Profile | |
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The Social Wall is the heart of oneSCDvoice — where you can share your thoughts, ask questions and discuss the latest SCD news and research, as well as post photos, videos, or links.
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Trusted Resources
Everything you’ll find on this site is curated by professional researchers who are guided by our councils of healthcare professionals, advocates, patients, and caregivers. We provide only the best, most trusted rare-disease resources.
Strong Partnerships
This onevoice site is maintained in collaboration with the Sickle Cell Disease Association of America . They help us keep up-to-date with the fast-changing world of rare disease and ensure that we always meet the needs of the community.
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Our Social Wall and private SCDteam groups are members-only features, with the aim of providing a safe, secure space for community-driven conversations, moderated by a disease-knowledgeable community leader.
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oneSCDvoice Working Group
-
Edward Donnell, MD, MPH
Director
Community Programs
Association of Black Cardiologists, Inc. -
Sohail Rana, MD
Director
Community Outreach & Education
Ctr for SCD, Howard U -
Gary A. Gibson
President & CEO
Martin Center SC Initiative -
Kathryn Hassell, MD
Director
CO Sickle Cell Treatment & Research Ctr -
Yvonne Carroll, RN, JD
President
IASCNAPA
Director, Patient Services - Hematology
St. Jude Children's Research Hospital -
Nancy M. René
Co-Founder
JVT Advocates
Supporting Autism, Sickle Cell Disease,
and K–12 Education -
Shamonica Wiggins
Former CEO & Founder,
#BoldLipsForSickleCell
Social Media Manager,
Sickle Cell Community Consortium -
Charles Jonassaint, PhD
Assistant Professor of Medicine
Social Work & Clin & Translational Science
U Pittsburgh School of Medicine -
Shirley Miller, MA
National Advocate -
Ade Adeyokunnu
Founder
Sikcell.com and @sikcell on Twitter -
Marie Ojiambo, PharmD
Founder
Sickle Strong Initiative -
Lanetta Bronté-Hall, MD, MPH, MSPH
President and Chief Health Officer
The Foundation for SCD Research -
Lewis Hsu, MD, PhD
Director
Pediatric SC Program
Children’s Hosp of U IL -
TaLana Hughes, MPH
Executive Director
SCDAI
