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    Dana May 25 2019 1:42 pm

    Good day I would like to know if anyone one has been taking or has just started Endari and Jadenu (for iron ) and how it may affected you and how it may have helped you.

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    Selena Webster-Bass May 24 2019 2:52 pm

    Celebrating World Sickle Cell Day in Jacksonville, FL Hydration Nation, Wednesday, June 19, 2019. Contact Selena Webster-Bass, MPH at selena@voicesinst.org for more information!

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    Selena Webster-Bass May 24 2019 2:49 pm

    Join us in Jacksonville, FL for a Sickle Cell Symposium featuring Dr. Patricia Adams Graves, Saturday, June 29, 2019. Contact Selena Webster-Bass, MPH Email selena@voicesinst.org for more information!

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    Cselde39 May 22 2019 5:15 pm

    I 'm looking for individuals with SCD who have had multiple infections. I had a hip replacement in 2013. Since then I've had multiple procedures done to my hip to get rid of the infection but it keeps coming back. Any ideas as to why???

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    budukayoko May 21 2019 9:51 pm

    I am a parent of 14 years old with SCD. He has been having priapism everyday for the past one week and it last for about 30mins to 45mins. It usually goes down faster after a warm bath. I am worried about him. It is embarrassing for him and he is yet to fully understand the import of living with SCD. Any advise on what to do.

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    Rintinsin May 20 2019 1:21 pm

    Hi I am here looking for a sympathetic ear because I figure maybe amungst my own people will understand. Every time I open up about my disease it always turns to misunderstood anger. I don’t think that is a good way to heal. Let me give you some background and I am sorry if somehow the whole race thing offends, it is not my intention. I am a white sickler, I am like a genetic freak. My parents on both sides had the gene passed down over and ove…Read more

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    Annette May 16 2019 11:57 pm

    Hey Warrior's
    I need you'r help, my son is relocating to Arizona and he truly doesn't want me to stay in Chicago by myself, So I was wondering if there is any warriors from Arizona and where do you guy's get your treatment? Do they have an out patient pain clinic? where we can go in and get pain control and avoid the ER? any information that you can provide will be helpful.

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    Lc1800 May 16 2019 2:31 pm

    http://www.thejamaicaball.com/ spread the awareness

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    Kouklitsarn May 15 2019 5:37 pm

    https://www.onescdvoice.com/rarepoll-single/?poll=9 So I would love tips and insight from people that say it never effects their relationships.

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    andreharris May 14 2019 6:30 pm

    https://www.onescdvoice.com/news-meeting/scd-clinical-trials-network-workshop/

    If you’re in the Atlanta, GA area, please meet me this weekend! Register at the link below!

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    kbuckley May 14 2019 5:42 pm

    Carol's Promise Sickle Cell Foundation will be hosting our 2019 Sickle Cell Summit at Tarrant County College-Trinity River Campus. We have invited students that are studying to be doctors, nurses, pharmacists, social workers to a day filled with Sickle Cell and Trait education. We will also be giving out a SCHOLARSHIP.! If you are a student interested in this topic, please register at:
    https://2019sicklecellsummit_carolspromise.eventbrite.comRead more

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    andreharris May 14 2019 4:29 pm

    How’s everyone feeling? Check in!

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    andreharris May 10 2019 8:42 am

    What does your crisis feel like?

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    erickmaritim007 May 7 2019 1:37 pm

    Looking for possible factors contributing to high prevalence of SCD among Luo people of Nyanza kenya at mfangano highland

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    andreharris May 6 2019 11:28 pm

    Who's coming to the Symposium this year? I hope to see my #oneSCDvoice fam!

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    Amanda Vassall May 4 2019 3:58 pm

    Happy Saturday, oneSCDvoice family! With the weather warming up, what’s one thing you’re looking forward to this spring/summer? I’m excited for some consistent sunshine.

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    MSCDA May 2 2019 4:42 pm

    Hi, the Maryland Sickle Cell Disease Association (MSCDA) will be hosting a conference, "Care Today, Cure Tomorrow" on Saturday, May 18th in Baltimore, MD.
    The conference will feature talks on Gene Therapy, Bone Marrow Transplant, Status of New Therapies, Eye Health, Pain Management, Updates from SCDAA and Patient Advocacy. Please visit our website for more information and spread the word to patients, families and providers in Maryland

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    andreharris Apr 30 2019 5:29 pm

    https://fpnotebook.com/HemeOnc/Hemoglobin/ActVsOclsvEpsdInScklClAnm.htm

    Information about VOCs or sickle cell crises

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    andreharris Apr 29 2019 2:13 pm

    Do you know about Sickle Cell Kidney Disease?

    https://www.stjude.org/treatment/patient-resources/caregiver-resources/patient-family-education-sheets/hematology/sickle-cell-kidney-disease.html

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    sdianagarcia Apr 27 2019 2:09 pm

    We are in the South Bay in Los Angeles

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