Site-Wide Activity |
  • related content
    Profile Photo
    Dana Oct 22 2018 1:15 am

    Does this group have an app that I can download?

    + care    0
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    Dana Oct 22 2018 1:14 am

    Good night my name isDana Charles and I have Sickle Cell Anemia . I want to begin a healthy and non junk food diet and ideas on how to start and what should I start eating or drinking

    + care    1
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    sicklecellnews Oct 20 2018 10:55 am

    Nigeria 2019: Clueless Politicians Ignore Special Constituents
    http://bit.ly/2CtbGWM

    Sickle Cell Education Is A Must For All, by Adobie Mcallister
    http://bit.ly/2q37p5e

    titoluwani narrates the chain of events which led her to have 'the worst' crisis ever
    http://bit.ly/2yPGrlx

    New Drug Shows Promise For Vaso-Occlusive Crisis
    http://bit.ly/2PDEkIt

    Adekunbi Osisami’s Most Memorable Sickle Cell Crises: ‘At 21, I had to learn how to walk ag…Read more

    + care    1
    + hugs
    0
    + thanks
    1
    + prayers
    0
  • related content
    Profile Photo
    Lewis Hsu Oct 19 2018 5:04 am

    Do you have expired prescription medications in your medicine cabinet? I know I do! Here is an opportunity to dispose of them safely. On Saturday, October 27, 2018, from 10:00am to 2:00pm, the Drug Enforcement Administration (DEA) will hold its 16th National Prescription Drug Take Back Day. Go to DEATakeBack.com and find out a location near you to drop off unwanted, unused, and potentially dangerous medications. Cut down on the chances that y…Read more

    + care    1
    + hugs
    0
    + thanks
    1
    + prayers
    0
  • related content
    Profile Photo
    andreharris Oct 18 2018 1:59 pm

    A Parents’ Handbook for Sickle Cell Disease This is an awesome resource.

    + care    2
    + hugs
    0
    + thanks
    1
    + prayers
    0
  • related content
    Profile Photo
    Simon Wamalwa Oct 17 2018 3:02 pm

    Hi good people, my two year old son was just diagnosed with sickle cell. He has lived a healthy lifestyle until recently when he had to undergo a blood transfusion. Kindly, assist me get informed on how to manage his condition. Thank u people..

    + care    4
    + hugs
    1
    + thanks
    0
    + prayers
    1
  • related content
    Profile Photo
    dreamsicklekids Oct 16 2018 5:41 pm

    Who is all looking to attend Rare Disease Week on Capital Hill next year? Applications for a travel stipend are available until Dec 15th so register!

    http://rareadvocates.org/rdw/

    + care    5
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    YMC Oct 16 2018 5:11 pm

    • Here is the information to join the Clinical Endpoints Workshop on Oct 17 & 18th, 2018

    Watch the livestream of the @US_FDA & @ASH_hematology #SickleCell Disease Clinical Endpoints Workshop and provide feedback as participants identify gaps & propose development of new endpoints as a focus for future research https://buff.ly/2BWUnyU #OCESickleCell #ConquerSCD

    + care    5
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • related content
    Profile Photo
    YMC Oct 16 2018 4:42 pm

    The oneSCDvoice booth was awesome. I am glad so many additional people signed up.. I was talking to Dexter Darden's mom and telling her all about it. She was impressed!! Everyone that I spoke to about one SCD voice was excited!! Awesome work everyone!!!

    + care    5
    + hugs
    2
    + thanks
    1
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    YMC Oct 16 2018 4:39 pm

    The SCDAA was a great convention. The nursing session was great, and the IASCNAPA Impact of Hospitalization on people with sickle cell disease and their caregivers was FANTASTIC!!!

    On another note, don't forget that the NIH and ASH are sponsoring a webcast on sickle cell disease endpoints for clinical trials on Oct 17 and 18th.

    + care    5
    + hugs
    1
    + thanks
    2
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    andreharris Oct 16 2018 8:17 am

    Here are a few pics from the SCDAA 46th Annual Convention in Baltimore, Maryland! We were honored to have nazaire73 and Ambasador drop by the table!

    Please share you SCDAA pictures on the social wall, we want to see!

    + care    4
    + hugs
    2
    + thanks
    1
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    Amanda Vassall Oct 14 2018 3:17 am

    Please feel free to share pictures from the SCDAA 46th Annual National Convention!

    + care    4
    + hugs
    0
    + thanks
    1
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    Granny Nancy Oct 12 2018 9:16 pm

    Convention is great. Hi and welcome to all SC community members, so good to see you learning a lot and having fun. This me, Granny Nancy with my friend Cecil, and SCDAA President Beverly Francis Gibspon.

    + care    6
    + hugs
    1
    + thanks
    0
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    andreharris Oct 11 2018 4:35 pm

    To all the Sickle Cell Warriors, Caregivers, Advocates & Healthcare Providers attending the SCDAA 46th Annual National Convention - please drop by the booth to say hello & learn about our online community!

    + care    5
    + hugs
    1
    + thanks
    1
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    Saku Oct 8 2018 2:59 pm

    There is hope for patients with sickle cell disease!

    + care    6
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • related content
    Profile Photo
    sicklecellnews Oct 7 2018 8:57 pm

    1. Sickle Cell Trait (SCT): the good, the bad, the deadly
    2. SCT not always advantageous or benign
    3. SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD
    4. SCT: former NFL player James Clarke Ryan nearly nearly knocked out by Sickle Cell Trait, turns activist impatient for a cure!
    5. SCT: How I Cope – Geno Atkins
    6. SCT: Interview with foremost SCT activist, Ritchie Johnson, author, MAMA, AM TIRED!
    7. Clinical Tr…Read more

    + care    3
    + hugs
    0
    + thanks
    0
    + prayers
    0
  • related content
    Profile Photo
    Granny Nancy Oct 4 2018 6:29 pm

    Last month I had the pleasure of attending a Sickle Cell presentation by doctors from City of Hope in Duarte CA. It's good to see one of our local hospitals getting directly involved in Sickle Cell. They are focused on research and transplants, their work should be helpful to all who are looking at stem cell transplants as an option.

    + care    3
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • expertly curated content related to this topic

  • related content
    Profile Photo
    Granny Nancy Oct 4 2018 6:19 pm

    I was shocked by information I learned from Michael Moore's latest film (It's good by the way). In the last election, Trump got 60 million votes, Clinton got 63 million, but 100 million didn't vote! With all the important issues, especially healthcare, I hope you and all your friends and family will vote.

    + care    2
    + hugs
    0
    + thanks
    1
    + prayers
    0
  • related content
    Profile Photo
    Amanda Vassall Oct 3 2018 12:44 am

    American Society of Hematology to launch sickle cell disease clinical trials network When I interview people living with sickle cell I always ask the their thoughts on clinical trials. What are yours? Have you ever participated in a clinical trial? If not, would you be willing?

    + care    5
    + hugs
    0
    + thanks
    2
    + prayers
    0
  • related content
    Profile Photo
    Amanda Vassall Oct 3 2018 12:28 am

    Hello All! I had such a good time at the Memphis sickle cell walk with The Sickle Cell Foundation of Tennessee!!! Everyone is so kind (and funny) down south. Plus, we got to visit the Lorraine Motel for #MLK50. Ashley V.

    + care    6
    + hugs
    2
    + thanks
    1
    + prayers
    0
  • expertly curated content related to this topic

  • load more