Sickle Cell Disease Partnership

The Sickle Cell Disease Partnership is a multi-sector collaboration of healthcare stakeholders committed to advancing actionable federal healthcare policies that will improve the lives of patients living with Sickle Cell Disease.

The Partnership’s main objective is to work collaboratively across the Sickle Cell Disease community to translate the recommendations of the National Academies’ foundational report into legislative and administrative actions in Congress and the Executive Branch. Their vision is a day when every individual with Sickle Cell Disease in the United States lives to his or her fullest potential because the individual has timely, sustained access to high-quality, equitable, coordinated care and treatment.