Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Disease Partnership is a multi-sector collaboration of healthcare stakeholders committed to advancing actionable federal healthcare policies that will improve the lives of patients living with Sickle Cell Disease.
The Partnership’s main objective is to work collaboratively across the Sickle Cell Disease community to translate the recommendations of the National Academies’ foundational report into legislative and administrative actions in Congress and the Executive Branch. Their vision is a day when every individual with Sickle Cell Disease in the United States lives to his or her fullest potential because the individual has timely, sustained access to high-quality, equitable, coordinated care and treatment.
+myBinderRelated Content
-
Doris Duke Charitable Foundation awards grant to Critical Path InstituteIn a continuing effort to spur advance...
-
Stigma and pain in adolescents hospitalized for sickle cell vasoocclusive pain episodesOBJECTIVES: Sickle cell disease (SCD) p...
-
Sickle Cell Patients Endure Discrimination, Poor Care And Shortened LivesFor more than a year, NeDina Brocks-Capl...
-
Realizing Effectiveness Across Continents With Hydroxyurea: Enrollment and Baseline Characteristics of the Multicent...Despite its well-described safety and ef...
-
Yutaka Niihara, MD, MPHDr. Niihara has been involved in patient...
-
Music therapy helps relieve pain in adults with sickle cell disease, pilot trial suggestsMusic therapy can help ease pain in ad...
-
Allison A. King, MD, MPH, PhDDr. King is a pediatric hematologist and...
