Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Disease Partnership is a multi-sector collaboration of healthcare stakeholders committed to advancing actionable federal healthcare policies that will improve the lives of patients living with Sickle Cell Disease.
The Partnership’s main objective is to work collaboratively across the Sickle Cell Disease community to translate the recommendations of the National Academies’ foundational report into legislative and administrative actions in Congress and the Executive Branch. Their vision is a day when every individual with Sickle Cell Disease in the United States lives to his or her fullest potential because the individual has timely, sustained access to high-quality, equitable, coordinated care and treatment.
+myBinderRelated Content
-
Splenectomy versus conservative management for acute sequestration crises in people with sickle cell diseaseBackground: Acute splenic sequestration...
-
Translating sickle cell guidelines into practice for primary care providers with Project ECHOBackground: Approximately 100,000 perso...
-
Wally Smith, MDWally Smith is Professor of Internal Med...
-
Celebratory Scholarship Virtual Gala – Michelle’s House (SCDAA SC)Living with Sickle Cell Disease (SCD) du...
-
Allison A. King, MD, MPH, PhDDr. King is a pediatric hematologist and...
-
Our Family’s Journey With Sickle Cell DiseaseJune 19th is World Sickle Cell Day. We s...
-
The Bad Blood: My Life With Sickle Cell AnaemiaI wake up with an active volcano for a c...
