Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Health Care Disparities Among Adolescents and Adults With Sickle Cell Disease: A Community-Based Needs Assessment to Inform Intervention Strategies
source: Journal of Clinical Outcomes Management
year: 2020
authors: Marsha J. Treadwell, Eufemia Jacob, Danielle Hessler, Alex Francis Chen, Yumei Chen, Swapandeep Mushiana, Michael B. Potter, Elliott Vichinsky
summary/abstract:Objective:
Adolescents and adults with sickle cell disease (SCD) face pervasive disparities in health resources and outcomes. We explored barriers to and facilitators of care to identify opportunities to support implementation of evidence-based interventions aimed at improving care quality for patients with SCD.
Methods:
We engaged a representative sample of adolescents and adults with SCD (n = 58), health care providers (n = 51), and community stakeholders (health care administrators and community-based organization leads (n = 5) in Northern California in a community-based needs assessment. We conducted group interviews separately with participant groups to obtain in-depth perspectives. Adolescents and adults with SCD completed validated measures of pain interference, quality of care, self-efficacy, and barriers to care. Providers and community stakeholders completed surveys about barriers to SCD care.
Conclusion:
Strategies for improving access to compassionate, evidence-based quality care, as well as strategies for minimizing the burden of having SCD, are warranted for this medically complex population.
DOI: 10.12788/jcom.0019
read more
Related Content
-
Sending a Child With Sickle Cell Disease off to CollegeSickle cell disease afflicts about 100,0...
-
Prevalence and Correlates of Growth Failure in Young African Patients With Sickle Cell DiseaseGrowth failure (GF) in children with sic...
-
Vaso-Occlusive Crises and Costs of Sickle Cell Disease in Patients With Commercial, Medicaid and Medicare Insurance ...Aim: To characterize vaso-occlusive cri...
-
Charlotte 13-Year-Old With Sickle Cell Plays Lead Role in Broadway’s ‘Lion King’"The Lion King" opens Wednesday night at...
-
Me Myself and Sickle CellLiving her life with sickle cell anaemia...
-
The Rise and Fall of My Mental Health With Sickle CellWe all know that mental health and ment...
-
Today’s Faces of Sickle Cell Disease: Jennelle StephensonJennelle Stephenson was diagnosed with S...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.