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Listening to Sickle Cell Patients is Crucial During a Crisis
I recently was admitted to the hospital during a sickle cell crisis and because of suspected COVID-19. My experience was harrowing.
I have experienced many things as a sickle cell disease patient. I have had pneumonia more frequently than I can remember, suffered collapsed lungs, had deep vein thrombosis and pulmonary embolisms, spent weeks on end in intensive care, and been intubated a number of times. But this latest admission was the most traumatic of my life.
Community CenterQ & A With Andre Marcel HarrisQ: When were you diagnosed with sickle c...
education & researchRacism and Health-Related Quality of Life in Pediatric Sickle Cell Disease: Roles of Depression and SupportIntroductions: Sickle cell disease (SCD...
people & placesSheresa Walker-BrownSheresa Walker-Brown is a Developmental ...
Community CenterToday’s Faces of Sickle Cell Disease: John Tisdale, MDFor many years, John Tisdale has been wo...
Community CenterHere to Stay — Living With Sickle Cell DiseaseMy name is Noah Alexander Williams and I...
people & placesLeigh Ann Wilson, LCSWLeigh Ann Wilson is a licensed clinical ...
news & eventsRare Disease Day at NIH 2023Rare Disease Day® takes place worldwide...
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