Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Susan Paulukonis, MA, MPH
Researcher Program Director
California Rare Disease Surveillance Program
Public Health Institute
555 12th Street, Suite 290
Oakland, California, United States
Susan Paulukonis is a rare disease epidemiologist, focused on public health surveillance of non-reportable diseases of significant impact and their effect on the people living with them. Health disparities within the populations living with these diseases or across similar conditions are of special interest in her work.
Beginning in 2006, Ms. Paulukonis transitioned from earlier work in educational research to the study of sickle cell disease, a severe and life-threatening genetic condition. She managed the first public health surveillance programs for sickle cell and thalassemias, a related genetic hemoglobin disorder, beginning in 2010. She has been PI for the California Sickle Cell Data Collection Program at Tracking California since 2015, with additional funding for this work received in 2019 from the state of California.
Ms. Paulukonis received a BA in History and an MA in Educational Technology from San Francisco State University, and an MPH degree in Epidemiology and Biostatistics from the University of California, Berkeley. She resides in Atlanta, GA, and makes program-related visits to California frequently.
Representative Publications:
Cancer Specific Survival in Patients With Sickle Cell Disease
Concurrent Use of Hydroxyurea and Deferasirox in Californians With Sickle Cell Disease
Impact of Medicaid Expansion on Access and Healthcare Among Individuals With Sickle Cell Disease
Related Content
-
Webinar Series: Sickle Cell Science: Path to Progress – Serving the Sickle Cell Disease Community Here and Abr...To commemorate Sickle Cell Awareness Mon...
-
Children’s Hospital of The King’s Daughters Sickle Cell ProgramChildren's Hospital of The King's Daught...
-
2023 NHLBI Annual Sickle Cell Disease Research MeetingSave the Date for the NHLBI Annual Sickl...
-
Sickle Cell Disease – Tips for Healthy LivingIt is very important that every person o...
-
The Sickle Cell Council of New MexicoThe Sickle Cell Council of New Mexico se...
-
A Comparison of an Individualized and Weight-Based Opioid Protocols for the Treatment of Vaso-Occlusive Episodes in ...Introduction: Vaso-occlusive episodes ar...
-
Sohail Rana, MDDr. Rana is Professor of Pediatrics at H...