Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Susan Paulukonis, MA, MPH
Researcher Program Director
California Rare Disease Surveillance Program
Public Health Institute
555 12th Street, Suite 290
Oakland, California, United States
Susan Paulukonis is a rare disease epidemiologist, focused on public health surveillance of non-reportable diseases of significant impact and their effect on the people living with them. Health disparities within the populations living with these diseases or across similar conditions are of special interest in her work.
Beginning in 2006, Ms. Paulukonis transitioned from earlier work in educational research to the study of sickle cell disease, a severe and life-threatening genetic condition. She managed the first public health surveillance programs for sickle cell and thalassemias, a related genetic hemoglobin disorder, beginning in 2010. She has been PI for the California Sickle Cell Data Collection Program at Tracking California since 2015, with additional funding for this work received in 2019 from the state of California.
Ms. Paulukonis received a BA in History and an MA in Educational Technology from San Francisco State University, and an MPH degree in Epidemiology and Biostatistics from the University of California, Berkeley. She resides in Atlanta, GA, and makes program-related visits to California frequently.
Representative Publications:
Cancer Specific Survival in Patients With Sickle Cell Disease
Concurrent Use of Hydroxyurea and Deferasirox in Californians With Sickle Cell Disease
Impact of Medicaid Expansion on Access and Healthcare Among Individuals With Sickle Cell Disease
Related Content
-
Sickle Cell Disease – Tips for Healthy LivingIt is very important that every person o...
-
Stuart H. Orkin, MDDr. Orkin is David G. Nathan Distinguish...
-
Comparison of Adult and Adolescent Quality of Ambulatory and Emergency Care in Sickle Cell Disease: Ascq-Me and the ...Quality of care (QOC) has been anecdotal...
-
Alice J Cohen, MDAlice Cohen, MD, FACP, is the director o...
-
Colorado Sickle Cell Research and Treatment CenterColorado Sickle Cell Treatment and Resea...
-
Southeast Alabama Sickle Cell AssociationThe Southeast Alabama Sickle Cell Associ...
-
Sickle Cell Patients Endure Discrimination, Poor Care And Shortened LivesFor more than a year, NeDina Brocks-Capl...