Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Disease Association of America
7240 Parkway Drive, Suite 180Hanover, Maryland, United States
Email Phone Web
The vision for a national coordinated approach to addressing issues related to sickle cell disease was unveiled in 1971 when representatives of 15 community sickle cell organizations met at “Wingspread,” a Racine, Wisconsin conference center, as guest of the Johnson Foundation. Out of that meeting, the National Association for Sickle Cell Disease was created. The name was changed to Sickle Cell Disease Association of America, Inc. in 1994.
Our mission: “To advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease. The Strategies defined at the “Wingspread” meeting laid the foundation for today’s Association.
-Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family.
-Prepare and distribute substantive educational materials.
+myBinderRelated Content
-
Suzanne Saccente, MDDr. Suzanne Saccente received her medica...
-
Shakir Cannon, advocate for minority health, diesShakir Lateef Cannon, a 34-year-old advo...
-
Chronic opioid therapy is more strongly associated with central sensitization in sickle cell disease than clinical p...Central nervous system sensitization (CS...
-
Pediatric prescriber pratices of hyrdoxyurea in sickle cell diseaseHydroxyurea (HU) has been shown to be ef...
-
Ginna Priola, MDGinna Priola is a pediatric hematologist...
-
Children’s Hospital of WisconsinThe Sickle Cell Research Program at Chil...
-
The Warrior SeriesAfter a recent stint in the hospital, I ...
