Lakiea Bailey, PhD | oneSCDvoice
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community advocates

Lakiea Bailey, PhD

Community Advocate
Executive Director of the Sickle Cell Community Consortium
525 Tribble Gap Road
Box 1195
Cumming, Georgia, United States

Dr. Lakiea Bailey is a sickle cell disease advocate, educator, research scientist, and is the Executive Director of the Sickle Cell Community Consortium.  Diagnosed with sickle cell disease at age three, she has become a passionate advocate for those living with rare diseases and is committed to serving as a voice of encouragement and empowerment within the sickle cell community.

Dr. Bailey earned a Bachelor degree in Biochemistry and Molecular Biology in 2001 and a Doctorate degree in Molecular Hematology and Regenerative Medicine in 2012.  During the course of her education, she was named a Doctoral Scholar with the Southern Regional Education Board (SREB), was the recipient of multiple honors and awards, including the Fisher Scientific Award for Overall Excellence in Biomedical Research, the Medical College of Georgia Alumni Association Award, the Georgia Reagents University Leadership Award and was inducted in the Alpha Upsilon Phi honor society.  Dr. Bailey believes that through hard work, diligence, patience and faith, even the seemingly most impossible obstacles can be overcome.  Her story has been featured by StoryCorps, NHLBI, Global Genes, Sickle Cell Warriors, Inc., Patient Worthy, LA Talk Live, and other media outlets.  Her research has been published in numerous peer-reviewed journals and she is honored to have been the recipient of multiple community advocacy awards and recognitions.

In addition to serving as the Executive Director of the Sickle Cell Community Consortium, a coordinated network of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and healthcare/research advisors, Dr. Bailey is a contract consultant, sickle cell disease and patient engagement expert with many companies and organizations, sits on the Research Advisory Board for the Foundation for Sickle Cell Disease Research and serves as an editor for the Journal of Sickle Cell Disease and Hemoglobinopathies.  Dr. Bailey enjoys traveling across the nation promoting sickle cell awareness.  Her goal is to provide a platform to harness and amplify the power of the patient voice, ensuring that the sickle cell patient and caregiver takes a leadership role in research, policy, advocacy, legislation and education.

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