New York State Sickle Cell Advocacy Network, Inc. (NYSSCAN) is a 501 (c)(3) tax-exempt, nonprofit, charitable, broad-based community organization. We are dedicated to servicing children and families with sickle cell disease, thalassemia, the trait, and other chronic conditions. Established in 1978 as the Queens Sickle Cell Community Network, we subsequently became incorporated in 1997 and changed our name to Queens Sickle Cell Advocacy Network (QSCAN). Recently, we became New York State Sickle Cell Advocacy Network, Inc. (NYSSCAN).

We collaborate with health care professionals, government agencies and programs, private institutions, and interested community groups for the management and eventual eradication of the Sickle Cell Disease.

Our Mission and Vision:
A deep sense of commitment; it focuses on those with Sickle Cell conditions. We provide a clear sense of direction for families and individuals, enabling them to actively participate in their communities and health care needs.

We collaborate with researchers, participate in clinical trials, and collect data for the management and treatment of sickle cell disease and eventual eradication of the disease.