DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
This year on World Sickle Cell Day, a new report is drawing attention to the challenges of living with sickle cell disease (SCD) and the urgent need for change in patient care—particularly in the emergency department (ED).
Although SCD was identified more than 100 years ago, there has been little advancement when it comes to treatment and management, as well as overall understanding of the pathophysiology of the disease itself.
Recognizing the critical need for change, Pfizer Rare Disease brought together the Sickle Cell Disease Council For CHANGE (CFC), a group of more than 20 national SCD advocates, patients, and experts to tackle pressing issues facing people with SCD today. The CFC is focused on improving quality of patient care along with enhancing education and advocacy for the SCD community.
education & researchAccess to Care for Individuals With Sickle Cell Anemia – SCDAASickle cell disease (SCD) is a genetic b...
videos & visualsDr. James Eckman at the 2018 Access to Care Summithttps://www.youtube.com/watch?v=KxWA8HAO...
education & researchImproving vaso-occlusive crisis (VOC) management for those living with sickle cell diseaseThe Sickle Cell Disease Council For CHAN...
news & eventsGBT launches ACCEL grants program to improve access to care for people with Sickle cell diseaseGlobal Blood Therapeutics, Inc. (GBT) to...
people & placesGinna Priola, MDGinna Priola is a pediatric hematologist...
people & placesGriffin P. Rodgers, MD, MACPDr. Griffin Rodgers, Director of the Nat...
Community CenterSickle Cell Patients Endure Discrimination, Poor Care And Shortened LivesFor more than a year, NeDina Brocks-Capl...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.