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This year on World Sickle Cell Day, a new report is drawing attention to the challenges of living with sickle cell disease (SCD) and the urgent need for change in patient care—particularly in the emergency department (ED).
Although SCD was identified more than 100 years ago, there has been little advancement when it comes to treatment and management, as well as overall understanding of the pathophysiology of the disease itself.
Recognizing the critical need for change, Pfizer Rare Disease brought together the Sickle Cell Disease Council For CHANGE (CFC), a group of more than 20 national SCD advocates, patients, and experts to tackle pressing issues facing people with SCD today. The CFC is focused on improving quality of patient care along with enhancing education and advocacy for the SCD community.
education & researchAccess to Care for Individuals With Sickle Cell Anemia – SCDAASickle cell disease (SCD) is a genetic b...
education & researchImproving Vaso-Occlusive Crisis ManagementMany have spoken out about the need for ...
news & eventsGBT launches ACCEL grants program to improve access to care for people with Sickle cell diseaseGlobal Blood Therapeutics, Inc. (GBT) to...
people & placesNYC Health + HospitalsNYC Health + Hospitals are the largest p...
news & eventsStigmatizing language in medical records affects patient care, study showsPhysicians who use stigmatizing langua...
people & placesPaula Tanabe, RN, PhDPaula Tanabe, PhD, RN, MPH, FAEN, FAAN, ...
people & placesEast Carolina University Comprehensive Sickle Cell CenterEast Carolina University Comprehensive S...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.