Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Greater Boston Sickle Cell Disease Assocation
1803 Dorchester AvenueDorchester, Massachusetts, United States
Email Phone Web
The Greater Boston Sickle Cell Disease Association, Inc. is a federally approved 501(c) 3, local non-profit organization dedicated to advocating for and providing support services to patients and families facing the challenges associated with this incurable disease. The goal is to give persons living with SCD a chance to live healthier and more productive lives, and to promote awareness about SCD.
The organization was founded in 1995 by Reverend Ronald Stephenson, who was moved to do something about the lack of sickle cell awareness and support services for families affected by SCD in our region. His motivation to form the group was kindled by the comments of an acutely ill patient with SCD, who informed him that her biggest problem and that of many patients with SCD was that “no one seemed to care.” As a way of showing patients with SCD that some people do care, the GBSCDA was formed with the participation and support of a small group of patients, their family members, and health care workers at Brigham & Women’s Hospital and Boston Medical Center. The mission of the organization at that time was to promote awareness of SCD and to provide limited support services for all patients with SCD in our region free of charge.
A volunteer run organization, GBSCDA’s membership is comprised of lay persons as well as medical and allied health professionals. The primary source of our funding is from donations and fundraising events.
+myBinderRelated Content
-
New Book Tackles Being a Kid With Sickle Cell Diseasehttps://www.youtube.com/watch?v=sY1iDlKR...
-
Newborn Screening Guide for ParentsMost babies born in the United States ar...
-
KNOWvember Webinar: A grandparent’s voice – Advocacy and support for chronic pain familiesWhile parents are often the prim...
-
Find Patient Assistance With FundFinder, The Patient Access Network (PAN) FoundationAre you tired of monitoring the status o...
-
Improving the Quality of Care for Adolescents and Adults With Sickle Cell Disease—It’s a Long RoadThe World Health Organization defines qu...
-
Sickle Cell Community Health NetworkSickle Cell Community Health Network is ...
-
Ade AdeyokunnuAde Adeyokunnu manages the day-to-day op...
