DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
Students with sickle cell disease (SCD) feel that educators and administrators at their schools lack knowledge about SCD management — an issue that could be addressed by developing a handbook that staff could use to help students with SCD. The study with that finding, “Student perspectives on managing sickle cell disease at school,” was published in the journal Pediatric Blood & Cancer.
Most children with SCD are able to lead normal lives, despite complications, such as acute or chronic pain crisis, which occur as a result of the disease. However, they require specific assistance to maintain their health and prevent complications that can affect them daily. In a home setting, monitoring the needs of a child with SCD tends to be more feasible. On the other hand, during the day, children spend most of their time in school, an environment in which SCD episodes can be challenging.
Community CenterSick CellsElevating the voices of the sickle cell ...
people & placesDonna DixonDonna Dixon is President at Denver Sickl...
people & placesJohn James, OBEJohn James is the chief executive of the...
people & placesSickle Cell Disease Association of America Philadelphia/Delaware Valley ChapterThe Sickle Cell Disease Association of A...
education & researchSpecial Needs Factsheet: For TeachersWhat Teachers Should Know: Sickle cell ...
people & placesSickle Cell Disease CoalitionThe Sickle Cell Disease Coalition (SCDC)...
education & researchCaregivers and Sickle Cell DiseaseCaregivers are responsible for the physi...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.