Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Greater Boston Sickle Cell Disease Assocation
1803 Dorchester AvenueDorchester, Massachusetts, United States
Email Phone Web
The Greater Boston Sickle Cell Disease Association, Inc. is a federally approved 501(c) 3, local non-profit organization dedicated to advocating for and providing support services to patients and families facing the challenges associated with this incurable disease. The goal is to give persons living with SCD a chance to live healthier and more productive lives, and to promote awareness about SCD.
The organization was founded in 1995 by Reverend Ronald Stephenson, who was moved to do something about the lack of sickle cell awareness and support services for families affected by SCD in our region. His motivation to form the group was kindled by the comments of an acutely ill patient with SCD, who informed him that her biggest problem and that of many patients with SCD was that “no one seemed to care.” As a way of showing patients with SCD that some people do care, the GBSCDA was formed with the participation and support of a small group of patients, their family members, and health care workers at Brigham & Women’s Hospital and Boston Medical Center. The mission of the organization at that time was to promote awareness of SCD and to provide limited support services for all patients with SCD in our region free of charge.
A volunteer run organization, GBSCDA’s membership is comprised of lay persons as well as medical and allied health professionals. The primary source of our funding is from donations and fundraising events.
Related Content
-
Folumy Sickle Cell FoundationFolumy Sickle Cell Foundation (FSSF) is ...
-
T-Boz on her Sickle Cell Diagnosishttps://www.youtube.com/watch?time_conti...
-
Pfizer and the national newspaper publishers association collaborate to raise awareness of sickle cell disease and n...Pfizer Inc. and the National Newspaper P...
-
Hina Patel Foundation for Sickle Cell DiseaseHina Patel Foundation promotes positive ...
-
Sisterly bond behind sickle-cell curehttps://www.youtube.com/watch?v=9S-xVGsR...
-
The State-of-the-Art Methodology Behind New Sickle Cell Disease GuidelinesSickle cell disease (SCD) is an inherite...
-
oneSCDvoice leadershiphttps://www.youtube.com/watch?v=EOH6Wzq7...