• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
community organizations

Greater Boston Sickle Cell Disease Assocation

1803 Dorchester Avenue
Dorchester, Massachusetts, United States
Email   Phone   Web  

The Greater Boston Sickle Cell Disease Association, Inc. is a federally approved 501(c) 3, local non-profit organization dedicated to advocating for and providing support services to patients and families facing the challenges associated with this incurable disease. The goal is to give persons living with SCD a chance to live healthier and more productive lives, and to promote awareness about SCD.

The organization was founded in 1995 by Reverend Ronald Stephenson, who was moved to do something about the lack of sickle cell awareness and support services for families affected by SCD in our region. His motivation to form the group was kindled by the comments of an acutely ill patient with SCD, who informed him that her biggest problem and that of many patients with SCD was that “no one seemed to care.” As a way of showing patients with SCD that some people do care, the GBSCDA was formed with the participation and support of a small group of patients, their family members, and health care workers at Brigham & Women’s Hospital and Boston Medical Center. The mission of the organization at that time was to promote awareness of SCD and to provide limited support services for all patients with SCD in our region free of charge.

A volunteer run organization, GBSCDA’s membership is comprised of lay persons as well as medical and allied health professionals. The primary source of our funding is from donations and fundraising events.

expertly curated content related to this topic

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.