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MYTH: All individuals with SCD are drug addicts.
FACT: The hallmark of SCD is severe unpredictable pain sometimes requiring high doses of narcotics.
MYTH: Individuals with SCD don’t live past the age of 21.
FACT: The vast majority of individuals live well into adulthood.
MYTH: Sickle cell trait is a mild form of sickle cell disease.
FACT: Sickle cell trait is not a disease; it is generally an asymptomatic carrier state.
– If both parents have sickle cell trait, there is a 1 in 4 chance of having a baby with SCD.
– 1 out of 13 African Americans has sickle cell trait and many don’t know that they have it.
MYTH: SCD only affects black people.
FACT: SCD is seen in people of many races.
MYTH: Bone marrow (stem cell) transplant is a universal cure.
FACT: Not all individuals with SCD are eligible for stem cell transplant. There are associated risks. To learn more about the NIH Cure Sickle Cell Initiative, visit www.curesickle.org.
videos & visualsPreventing Strokes in Children with Sickle Cell Diseasehttps://www.youtube.com/watch?v=k6h7cb7S...
Community CenterToday’s Faces of Sickle Cell Disease: Tanielle RandallIt was not until their daughter was born...
education & researchSickle Cell Transition E-Learning Program (STEP) for teens with sickle cell diseaseThe Sickle Cell Transition E-Learning Pr...
people & placesTonymay FoundationTonymay foundation is a non-profit organ...
people & placesAmy MasonAmy Mason is the Director of Annual Sick...
news & eventsHealthcare advocates aim to better inform community on sickle cell realitiesOne in 2,400 are born with sickle cell d...
news & eventsAn Introduction to the Institute for Clinical Economic Review (ICER) and Their Implications for New Sickle Cell Dise...January 16, 2020 2:00 – 3:00 PM ET W...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.