• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
community organizations

California Sickle Cell Resources

UCSF Benioff Children's Hospital
747 52nd Street
Oakland, California, United States
Email   Phone   Web  

The Northern California Network of Care for Sickle Cell Disease and the California Rare Disease Surveillance Program have recently partnered to further enhance the California Sickle Cell Resources website. Through the collaboration, both programs hope to provide necessary resources regarding Sickle Cell Disease (SCD) for consumers and health care providers in California.

The Northern California Network of Care for Sickle Cell Disease, at UCSF Benioff Children’s Hospital Oakland, launched in 2009 as one of the Health Resources and Services Administration´s (HRSA) programs for sickle cell disease (SCD). HRSA has teamed up with programs around the country to:
-Understand the health care experiences of people with SCD, and
-Test out different ways to improve those experiences.

The Sickle Cell Data Collection program in California collects and analyzes data on the health and health care of Californians living with sickle cell disease (SCD). The data will help improve the health, outcomes and quality of life of these Californians by informing decisions about how best to meet their needs. The project is run by the California Rare Disease Surveillance Program, a part of the California Environmental Health Tracking Program and the Public Health Institute.

expertly curated content related to this topic

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.