Born January 26, 1976, in Atlanta, Georgia, Carlton was diagnosed with sickle cell disease as a young child. Despite repeated hospitalizations for painful crises, Carlton remained a straight-A student and attended the University of Virginia where he earned a Bachelor of Arts in Religious Studies (1999) followed by a Masters in Bioethics (2003). He then moved to Baltimore, where in he completed a Doctorate of Philosophy in Health Policy and Bioethics in the Department of Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health (2009).

Carlton published many papers on the intersection of bioethics and clinical research, and informed policies related to quality of care for sickle cell patients. He served on numerous federal and national professional society advisory committees convened to provide advice on, or oversight of, federal or professional society sponsored sickle cell disease-based initiatives including: the Health Resources & Services Administration’s Sickle Cell Disease Treatment Demonstration Program; National Heart, Lung & Blood Institutes (NHLBI) Sickle Cell Disease Healthy People 2020 Working Group; the CDC and NHLBI joint Steering Committee for the Registry and Surveillance for Hemoglobinopathies (RuSH) project; the National Human Genome Research Institutes Sickle Cell Trait Systematic Review Project Work Group; and the Food & Drug Administration’s Expert Workshop to Accelerate Drug Development for Sickle Cell Disease.

Carlton Haywood’s Obituary:

In Memoriam, Carlton Haywood, Jr. (1976-2021)

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