• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials

Sickle Cell Foundation Nigeria, Rhieos Develop 1st Multi-SCD Registry in Nigeria

In a bid to improve quality of care for persons with sickle cell disorder, Nigeria Sickle Cell Foundation Nigeria, SCFN, and RHIEOS Ventures yesterday signed a Memorandum of Understanding, MoU, to establish the first multi-centre Sickle Cell Disorder, SCD, registry in Nigeria.

The registry will be used to support and improve quality of treatment and care for persons with SCD as well as for policy formulation around sickle cell decision-making and research. The registry will be used to facilitate the implementation of National Guidelines for the management of SCD.

SCD is a major genetic condition in Nigeria. The country has by far the largest burden of the disorder anywhere in the world. Over 40 million Nigerians are carriers of the sickle cell gene and an estimated 150,000 babies are born every year with sickle cell anaemia (Hb SS).


To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.