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In a bid to improve quality of care for persons with sickle cell disorder, Nigeria Sickle Cell Foundation Nigeria, SCFN, and RHIEOS Ventures yesterday signed a Memorandum of Understanding, MoU, to establish the first multi-centre Sickle Cell Disorder, SCD, registry in Nigeria.
The registry will be used to support and improve quality of treatment and care for persons with SCD as well as for policy formulation around sickle cell decision-making and research. The registry will be used to facilitate the implementation of National Guidelines for the management of SCD.
SCD is a major genetic condition in Nigeria. The country has by far the largest burden of the disorder anywhere in the world. Over 40 million Nigerians are carriers of the sickle cell gene and an estimated 150,000 babies are born every year with sickle cell anaemia (Hb SS).
people & placesPat Corley, RNPat Corley is a retired nurse coordinato...
education & researchHemoglobin A1c and Fructosamine Correlate in a Patient With Sickle Cell Disease And Diabetes on Chronic Transfusion ...In patients with sickle cell disease (SC...
people & placesSickle Cell Disease Association-St. PetersburgAs a non-profit 501(c)3 organization, Si...
people & placesDominique GoodsonDominque Goodson is a young Adult SC All...
news & eventsCoronavirus Preparedness for People With Chronic Diseases – WebinarEvent Date: Mar. 13, 2020 Event...
Community CenterSickle Strong Initiative – Dr. Marie OjiamboI was born into a family of four (second...
videos & visualsImproving the Lives of People with Sickle Cell Diseasehttps://www.youtube.com/watch?v=NPaV0glX...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.