Sickle Cell Society Ireland

Sickle Cell Society Ireland (SCSI) is the Official Umbrella organisation for all sickle cell support groups in Ireland. It is a parent led NGO Organisation working at local, regional, national and European Union level.

SCSI works in partnership with Sickle Cell Society UK, Pan European Sickle Cell Alliance (PESCA ), Global Sickle Disease Network (GSCDN), Worldwide Initiative on the Social Study of Haemoglobinopathies (WISSH), Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University, UK, Irish Blood Transfusion Services and the Children’s Hospital in Crumlin.

The foundation of SCSI was laid in 2006 during a Trinity College Social Work Master’s Thesis (written by Esther Onolememen) which addressed African Parents’ Experiences of Living and Coping with Children with Sickle Cell Disease in Ireland. Esther Onolememen is currently doing a PhD in Public Policy addressing Health Policy implications of Sickle Cell Disorders in Ireland.