Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Society Ireland
Unit 14 MG BuildingBase Centre, Damastown Road
Damastown, Ireland
Email Phone Web
Sickle Cell Society Ireland (SCSI) is the Official Umbrella organisation for all sickle cell support groups in Ireland. It is a parent led NGO Organisation working at local, regional, national and European Union level.
SCSI works in partnership with Sickle Cell Society UK, Pan European Sickle Cell Alliance (PESCA ), Global Sickle Disease Network (GSCDN), Worldwide Initiative on the Social Study of Haemoglobinopathies (WISSH), Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University, UK, Irish Blood Transfusion Services and the Children’s Hospital in Crumlin.
The foundation of SCSI was laid in 2006 during a Trinity College Social Work Master’s Thesis (written by Esther Onolememen) which addressed African Parents’ Experiences of Living and Coping with Children with Sickle Cell Disease in Ireland. Esther Onolememen is currently doing a PhD in Public Policy addressing Health Policy implications of Sickle Cell Disorders in Ireland.
+myBinderRelated Content
-
2019 Annual Sickle Cell Symposium – Sickle Cell: Past Present and FutureDRAFT Agenda 5:00pm Registration, netwo...
-
Maria Hartleben, LCSWMaria Hartleben is a licensed clinical s...
-
World Sickle Cell Day with Special Guest Mr. Tony Adkins, TV Host Sandy Bodeau, Dr. Harrington, and Dr. AlvarezFriday, June 19, 2020 1:00PM to 2:15PM ...
-
Sickle Cell Summer Enrichment Camp: Piedmont Health Services and Sickle Cell AgencyPiedmont Health Services and Sickle Cell...
-
Senator Cory Booker Holds Roundtable Discussion on Sickle Cell Disease and His New Bill, The Sickle Cell Disease Res...[February 28, 2018] Today is #RareDiseas...
-
Charlotte Flemmings, MPACharlotte Flemmings is the founder of Si...
-
Sickle Cell Association of BCSickle Cell Association of BC is a non-p...
