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Dr. Alan Anderson who was involved with several pediatric sickle cell disease and cancer projects at hospitals in Africa, began working on a new program. It was launched at Greenville Health System, which cared for more than 450 patients with SCD in 2017. The program features a team of social workers, psychologists, nurses and doctors who provide inpatient and outpatient care, including infusions of pain medications, blood transfusions, education, support and preventive therapy for patients as they grow older.
This improves coordination of care and ensures there are no barriers to care, such as a lack of transportation or insurance. It is based on a model of treatment that combines preventive therapy and a consistent team approach and that’s led to increases in survival. The program also hopes to raise awareness of the disease in the community by working closely with a new Greenville Sickle Cell Disease Community Advisory Board made up of community leaders.
news & eventsGBT Receives FDA Breakthrough Therapy Designation for Voxelotor for Treatment of Sickle Cell Disease (SCD)Global Blood Therapeutics, Inc. (GBT) to...
news & eventsGlobal Blood Therapeutics Announces Completion of Safety Review by Independent Data and Safety Monitoring Board (DSM...Global Blood Therapeutics, Inc. (GBT) (N...
Community CenterSickle Cell Warriors, Inc.Sickle Cell Warriors is a group of peopl...
people & placesSickle Cell Disease Association-St. PetersburgAs a non-profit 501(c)3 organization, Si...
Community CenterToday’s Faces of Sickle Cell Disease: Carolyn Rowley, PhDCarolyn Rowley is a psychologist, patien...
education & researchHemoglobin A1c and Fructosamine Correlate in a Patient With Sickle Cell Disease And Diabetes on Chronic Transfusion ...In patients with sickle cell disease (SC...
people & placesNkechikwu AzingeNkechikwu Azinge is the founder of the S...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.