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Representative Johnson Files Four Sickle Cell Disease Related Bills
State Representative Jarvis Johnson (HD 139) has filed four bills that will raise awareness, create a grant program, and improve the lives of those living with sickle cell disease in Texas.
“Sickle Cell is too often a forgotten illness, that predominately affects Black and Hispanic communities. We must work to ensure those living with sickle cell are given the ability to live as pain-free as possible while they are in crisis. Awareness and research is incredibly important to continue to improve the lives of sickle cell patients. I filed these bills today with the intention of not only to bring solutions to Texans living with Sickle Cell Disease, but also to spark a conversation regarding this disease” Representative Johnson stated.
First, HB 2576 if passed will create an exemption for sickle cell patients as it pertains to prescribing and dispensing opioids. This exemption expands the current statutes that exist for cancer and hospice patients.
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videos & visualsSickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroithttps://www.youtube.com/watch?v=RAvi5y95...
news & eventsRare Disease Day Symposium at the Quinnipiac Frank H. Netter MD School of MedicineSince 2015, the Frank H. Netter MD Schoo...
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education & research2019-2021 ASH Clinical Practice Guidelines on Sickle Cell Disease: What You Should KnowThe American Society of Hematology (ASH)...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.