Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.

Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.