Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Thalassemia Patients Network
1139 St. John’s PlaceBrooklyn, New York, United States
Email Phone Web
Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.
Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.
+myBinderRelated Content
-
Inspiring More MindsInspiring More Minds, Inc. is dedicated ...
-
More Life Hacks for Managing Sickle CellI previously shared some tips for managi...
-
Australian Sickle Cell Advocacy Inc.Australian Sickle Cell Advocacy (ASCA) I...
-
Adrienne ShapiroAdrienne is a fourth generation of mothe...
-
VIRTUAL Camp Cell-A-BrationCamp Cell-A-Bration is a week-long camp ...
-
Carla LewisCarla Lewis is dedicated mother, wife an...
-
Translating sickle cell guidelines into practice for primary care providers with Project ECHOBackground: Approximately 100,000 perso...
