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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Diseases and Orphan Products Breakthrough Summit
Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products.
October 17-18, 2022
This event has ended.
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people & placesSickle Cell Disease Patients Community of TanzaniaThe main objective Sickle Cell Disease P...
people & placesThe Nazhi Thee Baker Angel Foundation Inc.The Nazhi Thee Baker Angel Foundation In...
videos & visualsWelcome to oneSCDvoicehttps://www.youtube.com/watch?v=B-hcFDRb...
education & researchCaregivers and Sickle Cell DiseaseCaregivers are responsible for the physi...
people & placesRae BlaylarkRae Blaylark is a passionate and genuine...
people & placesIsaac OkelloIsaac Okello is a Sickle Cell Advocate f...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.