DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products.
October 17-18, 2022
This event has ended.
people & placesZulikhat Segunmaru, BSZulikhat Segunmaru was a patient navigat...
news & events10th DC Community Health Connect Event by Rodham InstituteThis event has ended. Stay tuned for upc...
people & placesIII & Long FoundationThe III & Long Foundation was founde...
people & placesNew England Pediatric Sickle Cell ConsortiumThe New England Pediatric Sickle Cell Co...
people & placesFlorence Neal Cooper SmithFlorence Neal Cooper Smith has been figh...
videos & visualsSickle Cell Disease Coalition (SCDC)https://www.youtube.com/watch?v=oQP-Uq0B...
news & eventsGreenville program tries team approach to improve lifespan of sickle cell disease patientsDr. Alan Anderson who was involved with ...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.