DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From Illness
Elijah Powell was determined to live his life fully, to achieve his goals in spite of his sickle cell diagnosis. He was known for declaring: “I have sickle cell, but sickle cell doesn’t have me.”
On Jan. 14, early in the morning, Powell died due to complications from his sickle cell disease. He turned 25 two days before his death.
He described the pain crisis as “beating you with a bat, or setting you on fire, and you can’t do anything,” and said it was hard having sickle cell because of how the condition depleted his body.
Community CenterWarren rapper draws influence from sickle cell diagnosisSeventeen-year-old Ja’Vionte “Tae Mo...
people & placesSickle Cell Foundation, Inc. – TallahasseeThe Sickle Cell Foundation, Inc. was org...
people & placesNew York State Sickle Cell Advocacy Network (NYSSCAN)New York State Sickle Cell Advocacy Netw...
news & eventsGreenville program tries team approach to improve lifespan of sickle cell disease patientsDr. Alan Anderson who was involved with ...
videos & visualsNew Book Tackles Being a Kid With Sickle Cell Diseasehttps://www.youtube.com/watch?v=sY1iDlKR...
news & events28-Year-old Sickle Cell Survivor Becomes Medical DoctorA 28-year-old sickle cell anaemia surviv...
news & eventsMcCourty twins praise aunt who lost battle with sickle cell disease for ‘defying the odds’Twin brothers Jason and Devin McCourty s...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.