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Pfizer and the National Newspaper Publishers Association (NNPA) are collaborating to increase awareness about sickle cell disease and to discuss the need for improved patient care, as well as the importance of clinical trials.
The National Heart, Lung and Blood Institute (NHLBI) of the National Institutes of Health (NIH) estimates that sickle cell disease currently affects up to 100,000 Americans, making it the most common inherited blood disorder in the U.S.
The disease affects many ethnic groups, but people of African descent seem to be hit the hardest by the blood disorder, say researchers at the American Society of Hematology. The Centers for Disease Control and Prevention (CDC) statistics show that sickle cell disease occurs in approximately one out of every 365 African-American births.
news & eventsSickle Cell Disease Stakeholder Engagement Workgroup—Strategies to Improve Sickle Cell Disease Primary CareThe Department of Health and Human Servi...
people & placesDonna DixonDonna Dixon is President at Denver Sickl...
people & placesSickle Cell Anemia Association of QuebecThe Sickle Cell Association of Quebec is...
people & placesLametra Scott, PharmDDr. Lametra scott is the founder of Brea...
education & researchAssessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to TransitionIntroduction: Transition of medical car...
news & eventsRare Disease Week on Capitol HillNow in its 12th year, Rare Disease Week ...
people & placesThe Heart of Gold Sickle Cell Foundation of Northern VirginiaIt is our mission to serve as an advocat...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.