Google
Trusted Resources: News & Events
Latest announcements and gatherings
Young Sickle Cell Patients Who Don’t Take Medication Have Lower Quality of Life
Adolescents and young adults with sickle cell disease (SCD) who don’t regularly take the medication hydroxyurea (or who don’t adhere to prescribed instructions) are generally those with medication-taking barriers such as forgetfulness, lack of access, poor medication knowledge, fear of side effects, or doubts about the drug’s treatment, according to new research. Patients with more barriers to taking their medication tended to have a lower quality of life.
The study, “Barriers to hydroxyurea adherence and health-related quality of life in adolescents and young adults with sickle cell disease,” was published online in the European Journal of Haematology. The researchers focused on clarifying the relationship between these barriers and quality of life for SCD patients.
+myBinderRelated Content
-
Student perspectives on managing sickle cell disease at schoolObjective: The study objective was to i...
-
Mental healthTreatment for depression and anxiety ...
-
CAMEROON: Let’s Talk about Sickle Cell DiseaseThat day in the hospital, my intuition w...
-
Modupeoluwa BabawaleMs. Modupe Babawale is a passionate warr...
-
The Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
-
Today’s Faces of Sickle Cell Disease: Tosin OlaDuring a long hospitalization in 2005, T...
-
Kyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.