DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Kyriako Damavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other. Both Damavoletes and his younger sister have HbS beta thal. He knew he was different by about age 4 or 5, but it wasn’t until middle school that he truly understood the impact the disease would have on his life.
“At about age 12 or 13, I realized this disease would carry a lot of weight in my life. I saw my older siblings driving and getting ready for college. I thought to myself, ‘Am I going to be able to get a license, go to college, have a job? Like everyone else?’ I just wanted to have the chance others had.”
All grown up now, with an education and license to drive, Damavoletes works in the field of information technology.
news & eventsJohns Hopkins researchers offer new protocol to potentially cure sickle cell diseaseThere's new hope for patients who have b...
education & researchAssociation among sickle cell trait, fitness, and cardiovascular risk factors in CARDIAThe contribution of sickle cell trait (S...
videos & visualsLia – A 2014 Short Filmhttps://www.youtube.com/watch?v=TcX_v6Os...
education & researchWhat motivates individuals with sickle cell disease to talk with others about their illness? Reasons for and against...This interview study documented how indi...
Community CenterWhat do we have to do?In college I raised $52 for cancer. I ...
news & eventsEmpowered to Transition: Emerging Adults Sickle Cell Education SeriesKids Conquering Sickle Cell Disease Foun...
news & eventsFamily of late MMA fighter Rondel Clark starts foundation to raise awareness about extreme weight cuttingArianne Clark had a layperson’s know...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.