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Designed by Marsac during her fellowship at Children’s Hospital of Philadelphia, the Cellie Coping Kit was developed for children ages 6-12, and includes of a plush toy named Cellie, a deck of cards with coping and communication techniques, and a book for caregivers. The first Cellie kit was geared toward children with cancer, but has since been adapted for children with sickle cell disease, traumatic injuries, and food allergies. A kit for eosinophilic esophagitis, an allergy condition that causes inflammation of the esophagus, is in the works, as is a kit for the siblings of children with illness or disability.
The kit is designed not only to comfort children during their illness, but also to provide them with the tools they need to understand their treatment and communicate their feelings. The coping cards address various “stressors” children can face, from procedures (e.g. needle sticks), to emotional stress (anxiety and sadness), to side effects of treatment (nausea, hair loss).
education & researchIncreasing Educational Attainment in Adolescents with Sickle Cell DiseaseAdolescents with sickle cell disease (SC...
people & placesColorado Sickle Cell Research and Treatment CenterColorado Sickle Cell Treatment and Resea...
news & eventsIASCNAPA Sickle Cell Disease Conference: Treating the Whole PersonDate: April 14-15, 2021 Place: Online/V...
people & placesBeng Richard Fuh, MDBeng Richard Fuh is currently working as...
education & researchDetermining Adherence to Quality Indicators in Sickle Cell Anemia Using Multiple Data SourcesINTRODUCTION: Advances in primary prophy...
Community CenterDon’t Overlook Eye CareAs I sit waiting for my sister in the su...
videos & visualsLia – A 2014 Short Filmhttps://www.youtube.com/watch?v=TcX_v6Os...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.