Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
LIVING with Sickle Cell RVA is a fully functional 501 (c) 3 non-profit organization located in Richmond, Virginia. The organization was founded in 2015 by a mother of five who has two children LIVING with the disease.
The organization’s mission is to help kids and families affected by Sickle Cell Disease to LIVE through Education, Advocacy & Empowerment.
Education about Sickle Cell Disease as well as Sickle Cell Trait is provided to patients, their families, caregivers, educators, and anyone else that would like to learn more.
Related Content
-
Shamonica WigginsShamonica Wiggins is a 30-year-old sickl...
-
What It’s Like to Live With Sickle-CellWhen Damian Jackson was a young man, som...
-
GBT launches ACCEL grants program to improve access to care for people with Sickle cell diseaseGlobal Blood Therapeutics, Inc. (GBT) to...
-
Sickle Cell Disease Foundation of CaliforniaThe SCDFC provides a variety of program ...
-
A Sickle Cell Warrior Survival Story— Timi Edwin“When I was 10, I was flogged by a tea...
-
RARE Patient Advocacy SummitEach year, Global Genes convenes one of ...
-
Sickle Cell Carriers’ Unmet Information Needs: Beyond Knowing Trait StatusBenefits of identifying sickle cell dise...
+myBinder