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This winter, Shakir Cannon, a 34-year old passionate advocate for sickle cell disease research and education, died unexpectedly from a respiratory infection complicating his sickle cell disease. We knew each other from Twitter and he taught me both about sickle cell and his other strong interest, racial health disparities. It seems fitting to write about Shakir’s lessons and a look ahead at drug development for this rare disease, caused by a genetic mutation, for this World Sickle Cell Day.
One of our shared concerns was pain control. Severe pain in sickle cell occurs when the abnormal red blood cells lose their elasticity, collapsing into the sickle shape and blocking blood vessels, depriving them of oxygen. This results in severe pain as seen with gangrene as well.
Community CenterWhy You Don’t Hear Much About Sickle Cell AnymoreAbout 100,000 Americans have sickle cell...
people & placesLorri BurgessLorri Burgess was the Chief Operating Of...
news & eventsP.O.W.E.R. Community Based Organization TrainingCost: Free Starting Feb 6, 2020 12 PM ...
people & placesLaura Dortch-Edler, EdDDr. Laura D. Edler is an Assistant Profe...
Community CenterSickle Cell Society UKThe Society’s mission is to enable and...
people & placesFredericksburg Area Sickle Cell AssociationThe Fredericksburg Area Sickle Cell Asso...
people & placesUganda Sickle Cell Rescue FoundationIn July 2013, Uganda Sickle Cell Rescue ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.