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This winter, Shakir Cannon, a 34-year old passionate advocate for sickle cell disease research and education, died unexpectedly from a respiratory infection complicating his sickle cell disease. We knew each other from Twitter and he taught me both about sickle cell and his other strong interest, racial health disparities. It seems fitting to write about Shakir’s lessons and a look ahead at drug development for this rare disease, caused by a genetic mutation, for this World Sickle Cell Day.
One of our shared concerns was pain control. Severe pain in sickle cell occurs when the abnormal red blood cells lose their elasticity, collapsing into the sickle shape and blocking blood vessels, depriving them of oxygen. This results in severe pain as seen with gangrene as well.
people & placesRuth Nankanja, BAForty- three year old Ruth Nankanja is t...
Community CenterSickle Cell 101Sickle Cell 101 is a 501(c)(3) nonprofit...
news & eventsTechnical Assistance Webinar for the NHLBI Hope for Sickle Cell Disease ChallengeThe National Heart, Lung, and Blood Inst...
Community CenterBilly Garrett Jr. Chases Dream in the G LeagueOn a frigid New York Friday evening in F...
news & eventsAdvocacy Day – Sickle Cell Disease Association of America, Inc.Sickle Cell Disease Association of Ameri...
news & events28-Year-old Sickle Cell Survivor Becomes Medical DoctorA 28-year-old sickle cell anaemia surviv...
Community CenterSickle Cell Aid FoundationSickle Cell Aid Foundation is a register...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.