Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Transition: Taking Charge of Your Health and Health Care
source: Centers for Disease Control and Prevention
year: 2020
summary/abstract:Transition is the process of young people with sickle cell disease (SCD), a genetic blood disorder, learning to become more responsible for their health and transferring their health care to an adult healthcare provider. Learn about transitioning care with SCD, read tips to prepare for it, and find more resources to help manage transition. For teens with sickle cell disease, transition is part of maturing into an adult.
Sickle cell disease (SCD) is a genetic blood disorder affecting red blood cells. People with SCD have abnormally shaped red blood cells that block oxygen from reaching the body’s tissues and organs. SCD is present at birth, and mild to severe health problems, such as pain crises, infection, and stroke can affect people with SCD throughout their lifetime.
When a child with SCD is young, parents or other adult caregivers are responsible for managing the child’s health and healthcare needs. Parents or other adult caregivers will schedule doctor’s appointments, manage treatment schedules, and make sure the child is both eating healthy and sleeping well to reduce the severity and occurrence of pain crises and other SCD-related health problems.
read more
Related Content
-
Jewel Darbone (Remembering)Jewel Darbone was a sickle cell motivati...
-
Tri-County Sickle Cell Disease Association – OrlandoThe Sickle Cell Disease Association of T...
-
E.S.C.A.P.E. RetreatE.S.C.A.P.E. (Empowering Sickle Cell Adu...
-
Counseling Services RequestThe Be The Match® Patient Support Cente...
-
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of CareImportance: Sickle cell disease (SCD) i...
-
ASH Clinical Practice Guidelines on Sickle Cell Disease (SCD)https://www.youtube.com/watch?v=tozUcTSN...
-
What do we have to do?In college I raised $52 for cancer. I ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.