Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Self‐Management Recommendations for Sickle Cell Disease: A Content Analysis of Websites
source: Wiley Online Library
year: 2020
authors: Druye A. Andrews, Nelson Katherine, Robinson Brian
summary/abstract:This paper reports on the findings of a study designed to establish website‐based self‐management recommendations for sickle cell disease. Google and Yahoo search engines were used to search the World‐Wide‐Web. Purposive sampling was utilized to select 28 websites that met the inclusion criteria. Data were manually collected from health education materials and subjected to qualitative content analysis.
Self‐management was conceptualized as actions involving preventive health, self‐monitoring, self‐diagnosing, and self‐treatment. The results show that the websites recommend more self‐management actions for preventive health and self‐treatment than for self‐monitoring and self‐diagnosis. Frequent oral fluid intake, limitation of overactivity, eating a healthy diet, avoiding extreme temperatures, and infections were the commonest preventive health recommendations.
organization: University of Cape Coast, Ghana; Victoria University of Wellington, New ZealandDOI: 10.1111/nhs.12741
read more
+myBinderRelated Content
-
UH Researcher Reports the Way Sickle Cells Form May Be Key to Stopping ThemUniversity of Houston associate professo...
-
Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell ...Sickle cell disease (SCD) affects approx...
-
Assessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to TransitionIntroduction: Transition of medical car...
-
Kwamie Lassiter FoundationThe mission of the Kwamie Lassiter Found...
-
Individuals with Disabilities Education Act (IDEA)The U.S. Department of Education’s Ind...
-
World Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
-
These people living with an invisible condition are doing their best to raise awareness about itIn 2013, an inquest found a failure to f...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.