Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Parents’ Stories
source: Sickle Cell Society
year: 2018
summary/abstract:For couples of African, Caribbean, Middle-Eastern, Asian or Mediterranean origin who might be at increased risk of having a baby with sickle cell or thalassaemia, two serious genetically inherited blood conditions, it can be a very worrying time. England has a National Health Service Sickle Cell and Thalassaemia Screening Programme (NHSSCTSP) offering all pregnant women antenatal screening for sickle cell and thalassaemia. If the woman is a ‘carrier’ (or ‘trait’) the baby’s biological father is invited too.
To determine any barriers affecting the timeliness of screening and prenatal diagnosis (PND) offers and recommend ways of improving services, the Screening Programme worked jointly with the Sickle Cell Society (SCS) and UK Thalassaemia Society (UKTS) on an ‘engagement project’. Elaine Miller of the UKTS and I conducted structured interviews with parents at risk of having a baby with sickle cell or thalassaemia, who volunteered to share their personal experiences of going through antenatal screening within the last five years.
read more
Related Content
-
Parents Handbook for Sickle Cell DiseaseThis is a parents handbook for sickle ce...
-
T-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
-
Partnering With Your Child’s School: A Guide for ParentsThe booklet is designed to help parents ...
-
You’d never know this 2-year-old has sickle cell anemiaWhen you meet 2-year-old Evelyn Islam, t...
-
Back to School Tips for Sickle Cell Awareness Monthhttps://www.youtube.com/watch?v=eR7tqmjT...
-
Opioid Abuse Backlash Could Hurt Sickle Cell Patients’ Medication Needs, Some FearWith drug overdoses now the leading caus...
-
Sick Cells Documentaryhttps://vimeo.com/151876398...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.