The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group of patients, parents and health professionals who were all concerned about the lack of understanding and the inadequacy of treatment for people living with sickle cell disorders. The Society is managed by a committee of 10 volunteers elected at the Annual General Meeting, and they meet each month. The Management Committee is accountable to the members and works with a small core of paid staff to further the Society’s aims by providing special services and welfare schemes for sickle cell sufferers.

Sickle Cell Society’s vision is to be the most successful sickle cell organisation nationally with a wide network of well-informed, committed and active supporters working at local, national and international levels.