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When you meet 2-year-old Evelyn Islam, the first thing you notice is her grin. And her friendliness. And her curiosity.
You can’t help but smile as she mischievously steals phones to play with. You can’t help but be drawn into a conversation as she explains her surroundings to you in earnest toddler-speak. And you can’t help but play right along with her as she shows you her collection of beads from Beads of Courage, an organization that supports children who have serious illnesses.
Although Evelyn’s sickle cell anemia is a serious chronic medical condition, the fact that it isn’t obvious from the outside makes it easy to see Evelyn for the person she is. It’s easy for her to be defined by something other than her illness.
education & researchParents’ StoriesFor couples of African, Caribbean, Middl...
education & researchFamily functioning, medical self-management, and health outcomes among school-aged children with sickle cell disease...BACKGROUND: Informed by the Pediatric S...
Community CenterT-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
news & eventsSickle cell patients, families and doctors face a ‘fight for everything’Francesca Valentine is gearing up for a ...
videos & visualsTBoz on Living with Sickle Cellhttps://www.youtube.com/watch?v=n0JFsTmD...
news & eventsMy medical school lesson was tinged with racism. Did that affect how I treated a sickle cell patient years later?The young woman was curled up in a ball....
news & eventsJordin Sparks Remembers Sister Who Died of Sickle Cell Complications: ‘She Was So Strong’Last week, the American Idol winner’...
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