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Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
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Rare Disease Day Symposium at the Quinnipiac Frank H. Netter MD School of MedicineSince 2015, the Frank H. Netter MD Schoo...
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Caregiver Perceptions of Adolescent Self-Management Skills Predict Higher Disease Knowledge Among Adolescents With S...Introduction: The increased survivorship...
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Sickle cell sunday 10, Telling people your limitationshttps://www.youtube.com/watch?v=W9TIORqs...
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My medical school lesson was tinged with racism. Did that affect how I treated a sickle cell patient years later?The young woman was curled up in a ball....
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SCDAA 2023 National Abstract CompetitionIf you are a researcher, community-based...
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The Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
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Is Caregiver Education About Sickle Cell Trait Effective?Despite universal newborn screening that...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.