Google
Trusted Resources: News & Events
Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
+myBinderRelated Content
-
RARE Patient Advocacy SummitEach year, Global Genes convenes one of ...
-
Southeastern sickle cell conferenceSickle Cell Foundation of Georgia is org...
-
The challenges of being a caregiver to my cousin with sickle cellWhen I embarked on this journey as a c...
-
6th Annual Sickle Cell Patient and Family Educational SymposiumThe Sickle Cell Warriors Convention is a...
-
The Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
-
Health Literacy and Disease-Specific Knowledge of Caregivers for Children With Sickle Cell DiseaseThis study was conducted to measure the ...
-
The 12th Annual International Conference on StigmaThe 12th Annual International Conference...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
SomeBodyToTalkTo connects people affected by rare diseases with trusted resources, supportive communities, and opportunities to share their experiences.