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Latest announcements and gatherings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
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Rare Across America 2021Rare Disease Legislative Advocates (RDLA...
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RARE Patient Advocacy SummitEach year, Global Genes convenes one of ...
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Cayenne Wellness Center’s 15th Annual Sickle Cell Disease Educational SummitCayenne Wellness Center’s Annual Sickl...
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Parents’ StoriesFor couples of African, Caribbean, Middl...
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The Cellie Coping Kit helps sick kids manage the stress of treatmentDesigned by Marsac during her fellowship...
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65th American Society of Hematology (ASH) Annual Meeting & ExpositionThe 65th ASH Annual Meeting and Expositi...
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The ‘Voice of Lagos’ is silent: Entertainer Tosyn Bucknor dies at 37Nigerians are paying tribute t...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.