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Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Educator’s Guide to Sickle Cell Disease
source: St. Jude Children’s Research Hospital
year: N/A
summary/abstract:Sickle cell disease is an inherited blood disorder affecting about one out of every 375 African Americans. Most children with sickle cell disease fall within the normal intelligence range and should be encouraged to reach their full potential. Advances in medical treatment have dramatically increased the lifespan of people with sickle cell disease. For this reason, it is even more important that children with sickle cell disease receive the full benefit of a primary, secondary, and college education. The goal of this booklet is to help educators understand sickle cell disease, its complications (health problems), and its treatment. This publication will help educators assist children who have this condition to achieve their educational goals.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.