Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Caregiving Tips for Families of People With Disabilities
source: Centers for Disease Control and Prevention
These general caregiving tips provide families with information on how to stay healthy and positive. Keep in mind that these tips can be used to address many family issues. Information, support, advocacy, empowerment, care, and balance can be the foundation for a healthy family and are appropriate no matter what the challenge.
– Gather information about your family member’s condition, and discuss issues with others involved in the care of your family member. Being informed will help you make more knowledgeable health decisions and improve your understanding about any challenges your family might face.
– Notice how others care for the person with special needs. Be aware of signs of mental or physical abuse.
– Family members and friends can provide support in a variety of ways and oftentimes want to help. Determine if there are big or small things they can do to assist you and your family.
– Join a local or online support group. A support group can give you the chance to share information and connect with people who are going through similar experiences. A support group may help combat the isolation and fear you may experience as a caregiver.
Sleep Disturbance in Adults With Sickle Cell Disease: Relationships With Executive and Psychological FunctioningSleep disturbance is common among childr...
Sickle cell sunday 10, Telling people your limitationshttps://www.youtube.com/watch?v=W9TIORqs...
Brandi Abernethy: Nursing Student, Patient, Single MomWhen she was growing up in St. Petersbur...
Cardiopulmonary Fitness and Clinical Outcomes in Adults Followed in the Cooperative Study for Sickle Cell DiseaseIntroduction: Cardiopulmonary fitness is...
Today’s Faces of Sickle Cell Disease: Tesha SamuelsTesha Samuels was diagnosed with SCD at ...
Today’s Faces of Sickle Cell Disease: Tanielle RandallIt was not until their daughter was born...
Our Healthcare System Abandons Adult Sickle Cell PatientsWhen Janoi Burgess was a child, he thoug...
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.