Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Thalassemia Patients Network
1139 St. John’s PlaceBrooklyn, New York, United States
Email Phone Web
Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.
Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.
+myBinderRelated Content
-
Sickle Cell Foundation of Orange CountyThe Sickle Cell Foundation of Orange Cou...
-
Today’s Faces of Sickle Cell Disease: Deidra Flowers-WilliamsAt six months of age, Deidra Flowers-Wil...
-
Toy Drive & Holiday CelebrationIn efforts to assist in spreading holida...
-
Advancing Sickle Cell Advocacy ProjectAdvancing Sickle Cell Advocacy Project (...
-
Strategies to Avoid the FluIt’s cold and flu season and the usual...
-
Transition: Taking Charge of Your Health and Health CareTransition is the process of young peopl...
-
IU Nurse Invents Medical Device for People With Sickle Cell Diseasehttps://www.youtube.com/watch?v=TjE3Urth...
