Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
+myBinderRelated Content
-
Acute Chest Syndrome in Children with Sickle Cell DiseaseAcute chest syndrome (ACS) is a frequent...
-
Investing in a Cure for Sickle Cell Disease: Lakshmanan Krishnamurti, MDhttps://www.youtube.com/watch?v=Fr5KvM4U...
-
Pain Criseshttp://68.media.tumblr.com/c7875137ded96...
-
The Opioid Drug Epidemic and Sickle Cell Disease: Guilt by AssociationIn 2008, for the first time in Centers f...
-
2019 Chicago Sickle Cell SummitThe Chicago Sickle Cell Summit convenes ...
-
Malik was Cured From Sickle Cell Disease (Teaser)https://www.youtube.com/watch?v=RddQ_qvh...
-
Spectra Optia Device Save Way to Treat Sickle Cell While Using Less Blood Cell Packs, Study FindsThe blood-separation device Spectra Opti...
