Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
+myBinderRelated Content
-
Sickle Cell Disease: Reducing the Global Disease BurdenSickle cell disease has been largely an ...
-
Sustainability of Hematological and Clinical Benefits to HU Administration in the Prevention of Sickle-Cell Vaso-Occ...Hydroxyurea (HU) is approved in EU and U...
-
Sickle Cell Summer Enrichment Camp: Piedmont Health Services and Sickle Cell AgencyPiedmont Health Services and Sickle Cell...
-
Annual Sickle Cell Disease and Thalassaemia Conference (ASCAT) 2022The Annual Scientific Conference on Sick...
-
Darryl Watkins Stays Positive in Spite of Sickle Cell DiseaseDarryl Watkins has the HbSS variant of s...
-
Lisa M. Shook, MA, MCHES, CCPLisa M. Shook is an Assistant Professor ...
-
The University City Turkey TrotCome celebrate the 8th year of the Unive...
