• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
learn more
academic & health care centers

The Sickle Cell Care Coordination Initiative

UCSF Benioff Children's Hospital
747 52nd Street
Oakland, California, United States
Email   Phone   Web  

The Sickle Cell Care Coordination Initiative (SCCCI) seeks to improve care provided to youth and adults with sickle cell disease in Northern California. We are one of 8 programs in the U.S. funded by the National Heart, Lung and Blood Institute (NHLBI) to use implementation science to improve outcomes for individuals with sickle cell disease between the ages of 15 and 45 years.

The SCCCI brings together experts in sickle cell disease clinical care and clinical research, health services research, implementation and participatory research and emergency medicine. Their core team also includes individuals with sickle cell disease, their family members and dedicated community members.

Their aims are:
-increase the number of youth and adults with sickle cell disease who receive preventive care;
-support providers so they increase their adherence with evidence-based guidelines for sickle cell disease care; and
-support youth and adults with sickle cell disease to access needed resources within their communities to improve their quality of life and quality of care. The primary goal of the center is to decrease the preventable morbidity and mortality that this population is vulnerable to.

expertly curated content related to this topic

Don’t forget to join the oneSCDvoice community!

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close